15 years of shit.

I have suffered this terrible disease for 15 years.

I live in the frightful jail that means being constantly fearing for sugar, thinking about the time of the next insulin injection, in the fear of horrible sequelae, to the constant ups and downs of sugar ...

I haven't lived for 15 years.

When they diagnosed me at age 20, I still tried to lead a normal life, but I didn't enjoy it for all those fears.

I went to several psychologists, but without success.

Now, at 35, after several fainting and some problems derived from this (despite having good control and an HBA1c of 6.1), I no longer do anything out of my daily routine.

It is also true that my life was already a bit complicated before all this, but at least I could live it without being aware of this disease all day.

I do not understand how you can be so "happy" or at least it seems that you get along.

I am sorry to be so negative in my presentation, but it is what I feel.

Welcome to the forum

We all have our own "shit", don't believe.

I do not believe that any of those who are here are happy having diabetes, but hey, the happiness is something very debatible and personal, which for some is a paradise for others can be hell.
Surely my friend Alea has a saying inherited from her grandmother who better defines what she tried to say;)

Regarding what you say about diabetes.
The same is that I am a bit simplón (my trend is always to chop and simplify things ... defect of the profession, I suppose) but with this disease (type 1) you have no alternatives.
You have to click insulin, you have to measure yourself, you have to be aware of glycemia every time you take 1 or you are weird ... but there is no more.
And fighting that makes no sense, is hitting heads against a wall, in the end you hurt yourself and the wall is still intact.
Because there is no other solution to try to live as well as possible.

It is not normal or prick insulin, nor measure glycemia nor have hypos nor get up at 3 in the morning with a tremendous desire to urinate and a beautiful 400 in the glucometer ... That is not normal.
But it is not normality to be won by diabetes that can be controlled to a large extent ... I will not be a policeman, neither firefighter nor pilot planes or climb mountains or go to the pole, go down 3 hours in the marathon or get drunk with 1 meterFrom sucks, I don't miss great thing ... for everything else, diabetes does not prevent me from doing anything, and nothing is nothing.

What is still shit to have diabetes?
Of course, it is not even debatable.

Ale Moralina, Good morning: Mrgreen:

Hello Xavi, I feel a little the same and against more years I feel worse and I hate it, but the truth is that happy if it can be and not for having diabetes we have to think that life is the worst, I muxas times meI stop to think and look around and look super selfish since diabetes is shit but there are a thousand worse things very worse and realize that these people no matter how bad they are having a happy one are happy and fight against what they haveTruth that that gives you a little mood to know that you can be happy and that because of a disease you don't have to bitter your life.
The forum is going to ytar, I Yebo 3 days and I think it is helping me to encourage me and see the diabetes otherwise.
all the best

Welcome!!!!!!!
I subscribe what Owash says, totally.I am also very practical so when I almost 12 years ago entered the hospital almost in a coma and they told me that I had diabetes until I felt relief, because I thought I was dying, very sweetly;) ...... so I told myselfOr I still live with diabetes or have life bitter and I chose to continue living and being happy at times like everyone else.I have never let diabetes control my life although sometimes I have detest it, of course.
The truth is that if I look back, I don't remember being happier before having diabetes.Maybe my life experience, having spent very hard moments that have nothing to do with diabetes, makes me relativize everything else and that has helped me to accept diabetes, to live the present, to value what I have, not to loseTime, to seek happiness like everyone else and diabetes does not give it to me but it doesn't take it off either .....

Hello!
Well, I feel happy.Not for having diabetes obviously, but I am, and not less than when I didn't have it.What would you prefer not to have any disease?There is no doubt, but it is what Owash says, there is no alternative, or you take it or leave it.And if you leave it, you know what happens.Fuck!Before people died for diabetes!Are you not happy to invent insulin?
Sorry to say that it is likely that even if you had no diabetes, you wouldn't be happy either.I do not believe that your happiness or that of any of us depends 100% on diabetes.I don't want to be a demagogic but for example.When my father died I stopped being happy for a while, it was sad all the time and there was nothing that made me think it was worth continuing.When I debuted with diabetes, I had the low downturn, but the people around me supported me and continued having many reasons to be happy.Now I wait for a baby and I can't think of any other reason to feel happier.
Diabetes conditions my life but has not prevented me from making a ‘normal’ life, or getting out, getting drunk, or anything at all.And why not go to the pole?Everything is to propose it.
I think it is a matter of spirit, positivism ... think, 15 years without living?How do you want the rest of your life to be?You just have one!You choose how you live it.

Thank you all for answering.

I don't know, but in my opinion insulin has been the worst invention of humanity.I am sure that if this type of "cure" had not been accepted so horrible to us and so profitable for pharmaceutical ones, another much better had been found in a short time.

When I was in the hospital about to go into a coma, I completely refused to put me insulin, I have a cousin and a diabetic uncle and wise quite what it was.In the end they convinced me because they told me that in about 5 years a cure would come out, they even showed me magazines that almost assured it, I did not know that they have been taking our hair with the same phrase.

And in these 15 years I have also done everything but with my mind always controlling, always thinking about other things.This is not living.And now with 35 years, alone and with impotence problems, I am not for much optimism.

I don't know, but in my opinion insulin has been the worst invention of humanity.I am sure that if this type of "cure" had not been accepted so horrible to us and so profitable for pharmaceutical ones, another much better had been found in a short time.

If that had happened I would not be writing here, none would be alive .....
Today we have the tools to take care of us very well, great insulins that mimic what produces the pancreas, glucometers to measure glucose at home, insulin bombs, continuous meters ..... there are no excuses to at least try to take care of the bestPossible ..... come ... as long as you continue regretting just you can waste more time.And I feel so hard.Sorry.

The equation is clear ... Without insulin we die, little type 1 diabetes you will see in deep Africa or in countries with precarious health levels.
The inventors of insulin (Banting, Paulescu or whoever ... that there is discussion about it) saved our lives, that is so.

We all like to pay us for our work.
To pharmacists too.
The prices of insulins, and in general of all drugs, the government fixes them ... so if you have to find guilty, the first to accuse would be all governments that put prices for medications.
The patents last 25 years ... Within the second time, Lantus, Levemir, Novorapid etc can be manufactured by any company and will be generic.
To end "my defense" of laboratories, in the Valencian Community they are charging 3 years after serving their products, that when they charge ... and still no company has said that it withdraws its products (which has happened in Greece, byexample) ... that 3 years without charging in a business is a long time.

Cantamañanas like Bernat Soria or the Chinese one who said that he had also found the cure, which sometimes visit us the forum selling the donkey that diabetes is such or that ... simple smoke and criminal vendors, in my view... We are all excited about progress, but experience teaches you not to believe you anything until it is hypercomprobado and recommended by serious professionals and entities.

Impotence is a very large disorder, it is obvious, but in your place, I would worry more than neuropathy would not affect any vital organ ... without alarming, but a high percentage of people with diabetes who express impotence also haveAn advanced neuropathy.
I hope it is not your case.

Xavi,
Maybe in the forum you can find people not to feel so alone.Are you from Barcelona?
You can go to the Diabetics Asoaciation of Catalonia.I went to the beginning and TB helps you talk to other people who have your own life.
The impotence must be a whore the truth, but there are always alternatives in life to face each impediment.
Surely if you look at the half full glass you see everything a little better.

We have all gone bad for diabetes and without diabetes and happiness is in each one.Even what Sugars of his father tells, my father also died relatively recently, and for much sadness he felt, no matter how much he will not understand what had happened, leaving "well" is in each one and you can.

About diabetes, if it is a whore, very fat, but what we are going to do, hopefully a body of scandal, or be more lite, or ... or a thousand things that we cannot control and that either accept it or we canKeep giving heads against the wall and all we will get is that our head hurts.

I have diabetes from a very young age and my mother, with her best intention, told me in a few years there will be a solution, and the years passed and I kept clicking every day.And every year, 5 years were missing for the cure, and those 5 years passed and they were still 5 years.And one day, I would have more than 10 or 15 of diabetes, I said, I am asshole, my life is waiting for the future ... I better be happy with the injections stop waiting to be happy when I do not have diabetes.It is likely to die and continue depending on insulin, and what will have been my life?A wait for something that never came.And I remember that I told my mother (I would have about 15) and my mother told me: "Don't be negative" and it was just what was not being.I wanted to be happy with what I had, we spend our lives waiting for the future to be better without knowing how to enjoy the present ....

And on the issue of the cure ... it is Chungo, I believe that a pancreas transplant would be possible (in fact it is sometimes done next to kidneys or something).But a tansplanted organ has an average life of 10 years (and in our case with the problem of rejections, it would be less years), to me that they leave me with my pancreas a little chungo, but that everything but insulin works, I followWith my diabetes ... and well, there are many diseases that have no cure and neither are pharmaceuticals to be the culprits of all our ills ...

Xavi, we are with you.Sometimes I have had a very bad time, I also live anchored in the routine and I have very bad experiences since childhood.I have thought about terrible things that would do a lot of damage to my family, but I have a motto:

water.

Perhaps within 2, 3, 5 or 7 years at most they find a fairly acceptable solution for our problem.More and more progress is made in the development of pills and artificial pancreas ... endures !!And meanwhile, live and try to be happy doing things you like.There is no more.

Good luck and I am here for what you need.

How good xavi how many people encourage you.
You can see that many people have a situation like yours and you are not alone.Luckily or unfortunately, all of us who write to you understand you.
It gives me the feeling that more than in itself the diabetes is affecting you the most is one of its consequences, the helplessness ... I remember in a post that I commented and fervently defended that it is one of the worst things that can happen to it beingman and also so young….Have you done serious evidence?Do you have a definitive result?Do not have alternatives?
Being animated and happy can only control it and those here, whenever you want, we can listen to you (well in this case read).
A very big hug and encouragement.

I join you,

I encourage xavi, a very strong hug !!

Greetings

Hello, I am new in this and I have never responded to something like that and it seems to me that it would be fine to do it because I identify a little.The difference is that I have been with this condition for only 4 years, I am 17 years old and for this age it is very difficult for me, sometimes I do not even think .. everyone told me that my life is normal to be normal, equal to that of anyAnother person, but it is not true, I have seen them black trying to carry with me such a great responsibility, I have gone with a psychology for a long time that I look good and I am discharged, but I fall again and return with her... I still do not accept what I have, I can't talk about what I have because I start crying, it gives me everything, I am another!But out of that, I thank God that I have my parents, my family, I can walk, I appreciate what what we suffer has control, and to do the same, realize that we do not have a painful disease or that ends with us of aFatal form.It is what I think, I would not get to the big one, hate me for having diabetes, and for that I am working!I encourage, you're not alone .. We have people who understand and support you .. nobody better for that a person who has diabetes and who knows for what you pass!

Good afternoon.

The equation is clear ... without insulin we die, little type 1 diabetes you will see in deep Africa or in countries with precarious sanitary levels.
The inventors of insulin (Banting, Paulescu or whoever ... that there is discussion about it) saved our lives, that is so.

We all like to pay us for our work.
To pharmacists too.
The prices of insulins, and in general of all drugs, the government fixes them ... so if you have to find guilty, the first to accuse would be all governments that put prices for medications.
The patents last 25 years ... Within the time, Lantus, Levemir, Novorapid etc can be manufactured by any company and will be generic.

And then some slightly improved or supposedly better insulins.I say supposedly because after 10 years it is being seen that Humalog and the fastest action insulins are not really faster than normal insulin.Come on, they are another scam and cost 10 times more.

For finishing "my defense" of laboratories, in the Valencian Community they are charging 3 years after serving their products, that when they charge ... and still no company has said that it withdraws its products (which has happened inGreece, for example) ... that 3 years without charging in a business is a long time.

The problem is that the more people this patient, the more business they have.At the forefront of a president of a pharmaceutics, he acknowledged that one of his great fears is that there is a real cure for a profitable disease.And he stayed so Pancho.I judged them all for genocide.

Cantamañanas such as Bernat Soria or the Chinese one who said that he had also found the cure, which sometimes visit us the forum selling the donkey that diabetes is such or that ... simple smoke and criminal vendors, to myway of seeing ... We are all excited about advances, but experience teaches you not to believe anything until it is hypercomprobado and recommended by serious professionals and entities.

Cantamañas and criminals are the entities subsidized by pharmaceuticals that try to sell us that diabetes is a chupiguay disease and that a normal life can be made.The problem of the research of Soria or the Xino that you say is that they are parked.Big Farma prefer to spend billions in investigating new types of insulin that are useless instead of something that can take even remotely to a cure.

As you cannot multipitate I will respond to others one or one.

@Sugard
If I am from Barna but the times I have gone what I have seen are activities for children or for older people, of 20-30 people I have not seen.

@Ica
If I recognize that part of my discomfort is because of other problems that come even before, but with diabetes everything is more difficult and even more so when it begins to get toll physically.

And you are right is not a matter of waiting for a cure to be happy.If you can be great.But with my things and with diabetes everything makes me more difficult every day.

@Notmy
Thanks for your support message, if that's what I try, endure.Sometimes even for the family.

@quim
If that is fucking but the worst thing is that you want to leave, to meet girls.The only thing that I really liked to do and since this happens to me, I don't even consider leaving.

The endocrine told me that it was normal in a diabetic to have those problems, but to prescribe Viagra I had to go to another specialist to do more tests but lately I do not feel like doing anything.I don't know what to do.The truth is that at 20 when debuting they already told me in the clinical hospital that I had little sex.I have never known why.Did you also tell you?

@Elm
Thank you another hug for you.

@Alexandrite
I encourage with 17 years and only 4 diabetes your insurance that if you can see a cure or something similar before having problems.

Xavi, pay attention to your endocrine, consult a specialist, you are very young to throw in the towel, your problems may not be because of the diabetes if you say in the first post you have had good control.
Do not give up living, sex is a very important part of life, both for a man and for a woman and if there is a solution do not stop looking for her.

Oysters Xavi!
When you say ‘call this life’ apology but I would appreciate that you speak for yourself and your life.I have a full life, with great people around me and they are in the effort of each one to achieve a better or worse.

Well, I went to several games with 19 years approx.And there were people of all ages ... but the truth is that now I had long stopped going.

Well, you have to strive and leave.Surely it is good for you.I guess it's easy to say ... and your friends?Do not "force you" to do things?

And as Prado says, if there is a solution try to get it.Surely that would make you see things differently.
A hug and encouragement!

Xavi, anyone's life is easy.Hasn't it happened to see someone and say, look that your life is simple?And when you know the person see that he has problems like the rest of mortals.Ok, our problem is shit, a great shit ... I remember a day I dreamed, who was dreaming that it was diabetic and woke up and it wasn't, so I woke up (really) and .... let's go thatThe diabetes was not gone.This was recently, and a tear was silent.Come on, however accepted that we say we have the disease, we would all be happy to send it to shit.

And personal problems could make a list that would leave diabetes in the shoes sole.With 16-17 years I tried to take my life, and until 3 years ago I could not say clearly where my problems came from.Even so, now I'm happy, and really.Get out with friends, look for a hobby, just talking to people with diabetes is doing well ... Do you know someone?Try to make a list with things you like.It is also very good to let off steam, write a lot.My psychologist made me write something every day, the first days were a few lines, at the same time I could hit an hour writing.Although then you take those leaves and burn, it is going well to release the rage you carry inside.There is a lot of methods to overcome thoughts (which are really hurting us).I recommended a book: the uselessness of suffering.I have not finished it, I have been on the bedside for years and occasionally I read a chapter.Do not expect a book to return happiness, but you can get methods to try to see things from another point of view

And about the sex problem, try to look for a solution, I am surprised that with 15 years of evolution and with good control the problems come from this.They say that due to anxiety issues it can also happen ...

Welcome to the Xavi forum !!!: D

Maybe a large part of the problems you have head ... already, I know you have seen you psychologists, but maybe not adequate.I am that I am a woman, for a long time I have been doing therapy with a great professional (and not precisely at the root of my daughter's diabetes, no. It was much prior to that) and I am delighted with my achievements ... theDiabetes, a whore, of course, but once you assimilate the situation should not prevent you from having a more or less satisfactory life.

I am sure that if you want, you will be able to live much better.Cheer up!