Post surgery diabetes

Good afternoon,

On March 2, the pancreas operated because of an intraductal mucinous tumor, they have left me only the head of the pancreas, that is, they have removed two thirds of pancreas and since then I am diabetic.I am stressed, worried, depressive, totally overcome by diabetes.

Today I am with 22 units of Toujeo when I went to sleep, and with Novorapid three times a day before the main meals, I injected according to the measurements, more or less units, between 7 and 12 units in each meal.I am not stable and I have peaks with this medication of almost 300.

I have been reading the forum before registering and I confess that for me as if you speak Chinese basic: corrections, bowling, portions ... calculation of hydrates ... What is all that?I don't understand anything.I am lost, as based on lettuce salad, green beans, some boiled potato and rice in amounts of 60 g.Come on, a misery.Chicken, grilled fish from 100 to 120 g., Not like red meat, and boiled eggs.Sometimes one or two slices of whole wheat bread with one or two slices of sweet ham, and fresh cheese.Perhaps it would have been better not to leave the operating room (as is not the subject, I obvious the complications of the intervention that took me back to the operating room 4 days after the first operation, 12 days of the ICU, 35 days in total hospitalization, and thattakes me to a third visit to the operating room next month)

So far doctors are not very helpful, the supposed nurse even less, and I am totally lost with a vision of my depressing future life.

I don't know what to eat if I go to a restaurant, outside the salad and grilled fish that already at home.I don't know how to handle insulins or possible trips, vacations, etc., which used to be out of Spain.

I am terrified and I feel alone with this disease already for life, whether it is short, or not.Nor do I think I get to the old woman given my state of health.

All the best.

@"Emily" I imagine that you have to be overwhelmed and that reading about so many new concepts still makes you feel more lost ... Go slowly and try to document you well through some good page (Clinidiabet is very good), or book (or book (The Ragnar Hanas helped me a lot), looking in the Post Concrete forum on calculation of portions, ratios, sensitivity factor, etc. are concepts that you will end up handling and will help you to make things a bit more predictable.The carbohydrate ration tables of the Diabetes Foundation are very useful, there are also applications that can help you ... a lot of encouragement and a hug, it has to be a very complicated situation, I hope that the intervention of the next monthGo very well.

Welcome to the club, you just received a strong blow, you wobble, you are grogui, notes like you are going to fall and finish everything, it is normal ... but the bell will miraculously reach the corner you will take a breath, you will drink a sip of water, the bell will sound and you will put yourself on foot and continue fighting despite knowing that you will continue to blow.This is diabetes, at first everything is chaos, nobody gives you a convincing explanation, everything sounds like Chinese and the horizon looms very black, but you have to be assimilated little by little, informing, asking and testing, nobody is bornLearn and neither the doctors themselves can be right, you will have to be yourself, based on learning to know your body, as this reacts and above all to the test and error.It seems impossible, but we have all gone through that phase and all in one way or another we have moved.Here you have a lot of people like you, with the same cross on their shoulders and that they have had or have your same concerns, concerns, fears and doubts, do not stop asking, read and try.Much encouragement

Thank you very much for your words.

Hello @"emily", I agree with what the classmates tell you, at first it is a shock, and so many unknown data and concepts overwhel.It is not the end of the world or your life, it is a whore, yes, but do not say things like that you would have liked not to leave the woman's operation.If you get, little by little, with the help of your endocrine, or educator (and if it is a firecracker, to see if they can change it) you will dominate everything.But it is important that doctors advise you and following your case (that coming from an operation I suppose they will do it, but good).
At first it is normal that you are more unstable and have quite high peaks, especially if you come from an operation.It is a roll that has not explained the issue of carbohydrate rations, because it is fundamental.But right right now the guideline continues and contracted little by little, while you know what to do before a descent, all good, and I don't think it will be produced.First of all tranquility, although I know that it is not easy, I am going to turn within anything with this "gift" and I know that at the beginning it is completely overwhelming, but soon you will be adapted and if you put it to it you can eat ofAll or almost everything (another thing is the quantities).
When leaving something of the pancreas, will you continue to produce some insulin, or nothing?I don't know how it will go in your case ...
I leave you a couple of links to understand the issue of carbohirdats and rations, which is most important:

Eye, for now follow the guideline and not experience, until you stabilize yourself, and do not take your sensitivity factor, and ratio and others, do not pay attention to the fact that it is = 1 unity of insulin or anything like that, that depends oneveryone.Simply so that you are assimilating and reading, because I know that you will surely remain restless and wanting to know (because it happened to me)

https://www.diabetesforo.com/discusion/9445/calcular-lation-Hydrates-de-carbono/P1

Calculate rations (carbohydrates)
Calculating rations is simple ...

What glycemia rises are carbohydrates: everything that is born from Earth + milk (flours, tubers, vegetables, sugar, fruits, rice and a long etc.)
At first set on...

Ask what you need, many animals !!

@"Miexron" I don't know if what I have left of pancreas produces some insulin, doctors have not told me anything, maybe it is soon to know ... I ignore it.On the 25th of this month I have a visit with the endocrine, I have to take the notebook with the measurements.All this overwhelms me ...

It is normal for you to feel overwhelmed @"emily" don't worry.At the moment you have found a good forum where many have found support and knowledge, that is already help.
Little by little, ask your endocrine well when you are with him, I don't think he has a problem in solving the doubts you have.Meanwhile, you can't keep going to the educator to give you more guidelines and do a little more follow -up?It would be fine.I don't know where you will be, but here in my city (Málaga) there is a "day hospital" where there is a diabetes unit and we can go whenever we want and talk to educators, we can also call them if we need something or to arrange an appointment andthat can attend us more time.I don't know if you'll have something like that.
You can also seek support and knowledge in diabetic associations, surely there are some where you live, they usually have a website or Facebook.
Many encouragement, we really know that it is hard, but patience and good lyrics,
All the best.

Little by little you learn and while you recover.Much encouragement!

Thank you very much for the tips.:)

I am from Barcelona, ​​I have looked on the Internet associations, but in its websites I see very little activity and little information.

@"Miexron", I don't know if there is a place like the one you explain to me from Malaga, they have not told me to have it, nor have they offered me that kind of service, the educator is the nurse of the DRA.Headquarters, and it seems to me that it is not very understood, because he has told me things that are the opposite of what the endocrine has told me, so I don't have much confidence, I don't trust anything that has told me.The endocrine I had to look for it, particular, because the Dra.From the head of the social S. I did not want to direct me, and the endocrine has changed all the doses of insulin that she had put on, I have even changed the routines of the measurements for some more coherent;But none has told me about calculating hydrates, rations, equivalences ... Nothing.

The specialist has given me a scale of glycemic values ​​and the rapid insulin dose that I have to click according to the section in which my blood glucose is before having breakfast, eating and dinner.And although I asked him about extras, go out to eat outside, a celebration, and cases in which I do not control the menu, as is the case that they invite you to eat at someone's house, or a wedding, I do notHe gave more guideline than eating the protein they put me, and if possible vegetables or salad is possible.Nothing has told me about injecting me x fast insulin units to correct, which is what I read in the forum that you do, so in front of these things I do not know what to do, and I choose to stay in my house with myGreen Jewish with a little potato and grilled fish, or a salad with tuna, disgusted with life, and disgusting my husband and my son from passing.That is why (and other things of my health) I cry a lot, and I think things that I should not.

Forgive the billet.

Let's see if a compi de Barcelona is passed here and comments a bit that possibilities you have there @"emily", being a big city sure there is more than one option.Thus, looking quickly, this association is seen, now as assets they will be and how much will help, because no idea: Link Link

I do not understand that that they would not want to refer to an endocrine, and if, if the nurse is the head doctor it is normal that it is not very put on the subject.It should be a more specialized.Perhaps they are waiting for you to stabilize the operation to know how to classify diabetes and then give you more guidelines, for thinking positively ... At first it is normal for them not to leave you totally free in terms of counting rations andPutting the corresponding insulin and others, and usually go with the guidelines, because if they do not know sensitivity factor and others, they do not want to risk, and the body has to stabilize a bit first.In addition to understanding that you have to adapt little by little.Although it is frustrating that they don't give us more information when we need it.
Do not worry that if you continue with insulin, it would be normal for you to eat everything, taking care of yourself, and taking into account the rations and others, but without problems.At first I also saw that the sky closed and my life was over, but as soon as you take rhythm you understand that it is a bit of organization and practice.I today like everything today, the only thing I avoid is eating a lotAnd that kind of thing, but otherwise ...
I leave you a little book that gives us here, to start with this.He does not speak of rations or anything like that, but if he has some basic concepts explained in a quite clear way, in case it serves you something:

http: //www.juntadeandalucia.es/servicioandaluzdesalud/libary/plantillas/externa.asp?pag=../../publicaciones/datos/571/pdf/kitsupacientediabetes.pdf

Cheer up!

@"Miexron" I appreciate your help very much, I don't understand that they would not like to send me to the endocrine and that I had to look for it on my own, but this is the thing ... the specialized emfermera/educator is the one that I tell you, and as I commented, I told me wrong things and guidelines according to the endocrine.

What is that of the sensitivity factor?Nor have this named me how is it determined, with any specific test?

I'm going to download the booklet to see if you solve doubts.I am sorry to be heavy.

All the best.

I only get the image of the cover of the book, pity, but thanks equally.

@"Emily" First give you many spirits.This is not the end of the world and with everything you have overcome so far, this is a secuelilla.

Of course you can go out there and enjoy.It is very important that you learn that to calculate how many hydrates you eat, for example:

- The potatoes.Every 100 grams of potatoes have about 20 grams of hydrates that we have to metabolize with insulin.A cooked patatilla the size of a hard egg is about 100 grams, that is, we would be eating the 20 grams of hydrates.
- A normal green beans are about 250 grams, containing 10 grams of HC.
- A normal lentil dish has 40 grams of HC.

The amount of insulin for the bean dish is lower than for the lentil dish.What if I just want to eat 10 grams of hydrates of whatever?How do you calculate it?For that there are food tables that allow us to combine with each other always maintaining the same intake of HC grams or rations.(I spend one, which I think you must have for what you say)
In the end you will learn that 10 grams of HC is what we call 1 ration of HC and what for 50 grams or 5 rations of HC your body needs "x" insulin units, if before eating you are between 80-140 mg/dl and whatIf you are in 175 you will put "x+1" of insulin.
What is important is to find out the "X" based on knowing what you eat and the value you have at 2-3 hours of having eaten.

What if we are wrong ????Well, if we get too much insulin ... we will have to eat hydrates: a sugar envelope, half Coca Cola, half orange juice ... and then a cookie to maintain the level.

If we go ????Horror???
At 3 hours after eating, we measure the glucose and get more novorapid;If you have not given you a guideline, try 1 unit to download about 100mg/dl, if at 2-3 hours you have not lowered to normal values, do not do anything because it will have to eat again, so you will get more inThat food.Of course, you know that with 1 unit you did not lower what you should, so the next time you were short in one of the meals with the insulin and have an approximate glucose value (eg 250 mg/dl), you will go up to2 To correct the value.

This is proof and error.And on top of our body changes from one day to another.What was great today, tomorrow does not work and there is changing.
Doctors teach us to self -manage, in the end, we know more than them.

And salt and enjoy!At first it is hard and we have all gone through it.I, now, 2 years later there are days that I encourage me to eat rice (tripling my insulin) food that I love and had suppressed my diet.That day I also try to exercise to metabolize it well.

Link

@"Emily" Go reading, calmly, here is a lot of information.A hug

How strange not to be visualized the pdf @"emily", I leave it attached in the post so you can lower it, so you should not have problems.Anyway, the link that happens to you @"ainhoa" seems quite good and complete.@"Ruthbia" has also given you very good advice, I would only be careful with the issue of corrections and that would wait to have more info and the most controlled thing to apply things like that.
The sensitivity factor is simply knowing how much blood glucose each insulin unit lowers.You can obtain approximate with mathematical formulas and others there are, that divide weight between insulin units and a magical figure, etc.But it is not very reliable until you are stable and does not take into account other factors, ask your endocrine when you see it and should solve it with the values ​​you take.
Little by little and without overwhelms, the most important thing is that you are not bitter, and also of the most difficult.And don't worry about being heavy or anything like that, ask what you need!

My mother, what mess!I really don't know if I'm going to be able to manage all this ...

No, I didn't have that table or any other, they haven't given me anything.Thank you for facilitating it, I have taken a look;I don't see myself capable of learning all that ...

ruthbia said:
@"emily" first give you many spirits.This is not the end of the world and with everything you have overcome so far, this is a secuelilla.

Of course you can go out there and enjoy.It is very important that you learn that to calculate how many hydrates you eat, for example:

- The potatoes.Every 100 grams of potatoes have about 20 grams of hydrates that we have to metabolize with insulin.A cooked patatilla the size of a hard egg is about 100 grams, that is, we would be eating the 20 grams of hydrates.
- A normal green beans are about 250 grams, containing 10 grams of HC.
- A normal lentil dish has 40 grams of HC.

The amount of insulin for the bean dish is lower than for the lentil dish.What if I just want to eat 10 grams of hydrates of whatever?How do you calculate it?For that there are food tables that allow us to combine with each other always maintaining the same intake of HC grams or rations.(I spend one, which I think you must have for what you say)
In the end you will learn that 10 grams of HC is what we call 1 ration of HC and what for 50 grams or 5 rations of HC your body needs "x" insulin units, if before eating you are between 80-140 mg/dl and whatIf you are in 175 you will put "x+1" of insulin.
What is important is to find out the "X" based on knowing what you eat and the value you have at 2-3 hours of having eaten.

What if we are wrong ????Well, if we get too much insulin ... we will have to eat hydrates: a sugar envelope, half Coca Cola, half orange juice ... and then a cookie to maintain the level.

If we go ????Horror???
At 3 hours after eating, we measure the glucose and get more novorapid;If you have not given you a guideline, try 1 unit to download about 100mg/dl, if at 2-3 hours you have not lowered to normal values, do not do anything because it will have to eat again, so you will get more inThat food.Of course, you know that with 1 unit you did not lower what you should, so the next time you were short in one of the meals with the insulin and have an approximate glucose value (eg 250 mg/dl), you will go up to2 To correct the value.

This is proof and error.And on top of our body changes from one day to another.What was great today, tomorrow does not work and there is changing.
Doctors teach us to self -manage, in the end, we know more than them.

And salt and enjoy!At first it is hard and we have all gone through it.I, now, 2 years later there are days that I encourage me to eat rice (tripling my insulin) food that I love and had suppressed my diet.That day I also try to exercise to metabolize it well.

Thanks, I will read it.

ainhoa said:
Link

@"Emily" Go reading, calmly, here is a lot of information.A hug

@"Emily" you don't have to learn.Quiet based on using it, you learn it.
I have it in the kitchen, in a transparent folder so that they do not stain.

It is important that you fix as 250 g of beans need the same insulin as 300 g of lettuce or 38 g of cooked rice because each 10 g of HC have.That allows us to exchange food for the same insulin amount.

We have all learned, you will do it too.

Much encourage @emily!The principles are difficult but little by little it is overcome.
If your header does not send you to the endocrine change of doctor, a dependent type 1 diabetes is not in the outpatient.
The tables do not have to learn them by heart, my mother (I debuted as a young girl) at first I had plasticized in the kitchen to consult them, which if, you will have to buy a GR scale because at first calculate at the eye is complicated andYou have to weigh everything but you'll see that when you repeat meals you will see the size and you will begin to calculate the eyelet without the need to look at tables and make mental calculations quickly, it is easy:
10 carbohydrates = 1RATION
Everything that does not run, swim or vuele are HC and that is what you have to weigh (basically everything that grows on the ground:
Cereals, legumes, some vegetables, fruits, milk and yogurt also counts (cheese is free but careful that is pure fat).
Basically this is the summary.
Now you just have to know how many rations you want to eat: normally the first dish (legumes, pasta, rice ..) are HC, the second is free (CSRNE/fish) and the dessert (fruits) are HC and do not forget the bread thatYou also have to tell.Every day you don't have the same hunger but now at the beginning while you learn to calculate, try to be the same number of portions.
You only have to know how much 1 fast insulin unit goes down (the one you get every time you eat), which have explained it very well up, the easiest thing is to do the test when you are in those 300 that you say you arrive, put on 1 unit and check what has lowered you, the next day if it happens again with 2.
Apart from here is to play with the food you want to eat ... and little by little you will refine and seeing that all HC are not just as fast but that little by little.
Do not limit yourself to eat like sheep, leafs and little else.
From time to time I even like a nocilla snack and my nesquik I don't miss any day

Hopefully you are right!

Thank you

ruthbia said:
@"emily" you don't have to learn.Quiet based on using it, you learn it.
I have it in the kitchen, in a transparent folder so that they do not stain.

It is important that you fix as 250 g of beans need the same insulin as 300 g of lettuce or 38 g of cooked rice because each 10 g of HC have.That allows us to exchange food for the same insulin amount.

We have all learned, you will do it too.