Medical and patient societies create the Diabetes House

fer's profile photo   05/23/2013 4:51 a.m.

The president of the Spanish Diabetes Society (SED), Sonia Gaztambide, has stated that the percentage of people who do not know that she has decreased 10 % in recent years, thanks to the improvement of early diagnosis.For this reason, and with the aim of further reducing the percentage of people who do not know this disease, thirst, together with the Spanish Endocrinology Society (SEEN), the Spanish Pediatric Endocrinology Society (SEEP) and the Group NetworkDiabetes study in Primary Health Care (REDGDPS) have created the Diabetes House.

It is an initiative that seeksParticipatory ", by all levels of society, the integral approach of the disease.

To this coalition, in addition to the promoter entities of the House of Diabetes, the Spanish Society of Internal Medicine (SEMI) belongs;the Spanish Family and Community Medicine Society (SEMFYC);the Spanish Society of Primary Care Physicians (Semergen);the Spanish Society of General and Family Physicians (SEMG);the Spanish Cardiology Society (SEC);Sen-Neurology;Sen-Nefrology;the Spanish Society of Community Pharmacy (SEFAC);the Federation of Spanish Diabetics (Fede);the Spanish Patient Forum;and the Cyberdem Diabetes Research Network of the Carlos III Institute of Health.

All associations, together with the Ministry of Health, Social Services and Equality, have developed a manifesto in which the ten work areas reflect on which efforts must be focused for an integral approach to this pathology by all the levels ofsociety.

As explained by the president of the SEEP, Luis Castaño, the text highlights the need to ensure actions that promote, in a sustained way, the healthy lifestyle habits from very early ages and, in addition, seek the involvement of the entire society to promote theInformation and knowledge of diabetes for prevention.

Likewise, the ministry and societies have agreed on the importance of raising awareness and promoting early diagnosis in people with high diabetes risk;develop health policies that promote the integral, disciplinary and coordinated approach of disease management;establish an adequate therapeutic education of the patient and facilitate their participation in the management and control of the disease;as well as promoting the access of patients, individually, to the necessary resources for the responsible and rational self -management of pathology and its complications.

In the same way, they have advocated guaranteeing access to new technologies, both medical and information and communication, to improve the control and monitoring of people with diabetes;Effective the continuing quality training of health professionals;Promote and promote research of excellence in diabetes and its clinical application;and boost continued evaluation through indicators."With diabetes it can be lived but it is necessary that patients have an adequate therapeutic education since it is the only way we have for the management of this disease. Therefore, we consider that this initiative can bring to light many people whoThey have diabetes and do not know, "said the president of Fede, Ángel Cabrera.

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fer
05/23/2013 4:51 a.m.

@fer - Diabetes Tipo 1 desde 1.998 | FreeStyle Libre 3 | Ypsomed mylife YpsoPump + CamAPS FX | Sin complicaciones. Miembro del equipo de moderación del foro.
Co-Autor de Vivir con Diabetes: El poder de la comunidad online, parte de los ingresos se destinan a financiar el foro de diabetes y mantener la comunidad online activa.

  

It seems to me a more powerful a priori alliance than the one that had the extinct Fed.It looks good.I do not know who the idea has left, but everything that is to work for diabetes is interesting.Although I hope that the representation of the patients has voice to the same level as the others.

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HanSolo
05/23/2013 7:04 a.m.

ISCI / debut: 1986 / HbA1c: 5,5%

  

Part, initially, with a large paste: there is not the Ministry of Education and there are only 3 CCAA: Madrid, Catalonia and Andalusia.
My opinion is that either all CCAA are or houses of autonomous diabetes should be created.

In any case, this is almost always:
1.-What degree of influence will this body have in real decision making?
2.- How are decisions to be made within this entity?They do not seem that they have adopted any legal form (association, federation, foundation ...)
3- What specific weight will Fede have as patient representative?In a place where it is part of the pharmaceutical industry, part of politicians and all medical organizations ... How many votes would we have?weighted vote?1 vote by entity?
4.- It would be good to know the breakdown of economic contributions that support the entity ... more than anything for conflict of interest with future decisions.

Yesterday I twee several comments regarding the objectives of the new entity.I reproduce them, to see if we can make a good debate.

1. Survey actions that promote healthy lifestyle habits.Without mº Education we are not going anywhere, we must encourage children.
2. Look for involvement of the whole society to promote #Diabetes information.Only 3 CCAA involved at the moment. They are 14, with their respective health, education ... brutal task
3. Promote early diagnosis.Guides do not promote universal screening, the opportunist is supposed to be done. We have Findrisk to Tutiphen anywhere?
4. Integral approach to diabetes management. How many hospitals are diabetes in Spain?How many psychologists, podiatrists are in Unid.Diabetes? How many educators do exclus education?
5. Establish adequate therapeutic education of disease control. Endors must devote + time to educate.to the edu.Diabetological
6. Bet on the new technologies for the control of the patient with diabetes, it is not yet possible or connect glucometers to the PC of the consultation.Learn from @Forumclinic @kronikoesearea @Diabetesforo Integrar Experienc.
7. Farm will continue from medicine professionals. There is no professional "Diabetes educator" Professional profile.doctors recycling is regulated; everything else is missing
8. Promote research in the cure of diabetes.@Ciberdem covers this goal. But we always want +
9. Achieve a continuous evaluation of all the previous indicators. Until there was not well no registration of insulin bombs. We can standardize indicators in 17 SIST.different health?

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DiabetesForo
05/23/2013 7:50 a.m.
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I read your tweets.All reason.But they will have to give them a margin of trust.As far as I think, remember that Sanofi is behind the embryo of this initiative, along with thirst.We will see what happens.It doesn't seem bad that something moves.Better that to nothing.The important thing is how it evolves.

HanSolo's profile photo
HanSolo
05/24/2013 4:14 p.m.

ISCI / debut: 1986 / HbA1c: 5,5%

  

Everything is interesting for diabetes is interesting.

It will be against diabetes.No?: Shock:

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Sherpa41
05/24/2013 4:48 p.m.

En 1922 descubrieron la insulina, en 1930 la insulina lenta. ¿Que c*** han hecho desde entonces?

  

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