{'en': 'Parents of children with diabetes', 'es': 'Padres de niños con diabetes'} Image

Parents of children with diabetes

Velia's profile photo   04/28/2008 5:35 a.m.

Hello everyone,
My PQ continues with its cold but very good about Junifen syrup for him is better for the same thing that is thanks to the forum.I Stoy TB Com Anaa Stoy watching the PQ all day I don't even dare to leave it with my parents I guess over time.The honeymoon thing sure does not touch us because I debut with important acetoo.But well we are going to do.Adrián already tells us when he has a less bad hypo, he tells us that his head hurts.I wanted to comment on something to see if the same thing happens to you yesterday Merendo bread, it was the first time that I eat since I debuted, and we verified that nothing was uploaded with respect to the normal PQ when a sandwich is eaten as it does not run all afternoonGo through the clouds at dinner time.I guess we will learn a greeting over time

mariape's profile photo
mariape
10/19/2010 10:34 a.m.
No signature configured, update it from user's profile.

  

Good morning!!!!

Patrice, I'm glad to read you.The changes are complicated, the principle of course, vaccioens, summer .... Fortunately it already happened, I'm glad everything goes well.
The dining room, I never need to leave it, it would have cost me, the truth, because I have been very shit, do not believe, but I know several people who do leave them and do well .... I do not know if the newYou have coincided with Maclaudi, now he is very drunk because he is from opposition, it is also true that the person responsible for attending to Clam is very involved and has a very direct unchantive with the mother ... As they grow, everything will be made to you.
UDAN, above that mood.It is not surprising that you have that anger, it is not easy to assimilate certain things ... fortunately time runs in your favor, and you will soon be strong, you will see ... I would not want to worry, but those figures are bad for your little.... there is avoiding them when they are small and much more at night.How did your endo not explain it?Sometimes there is no explanation with diabetes, but you have to act.I guess the guidelines will have changed .... What insulinas did it carry?Let's see if we can give you a hand ...
Mariape, to see if you finish getting well ... regarding mold bread is rare because it has a larger glycemic index.What did you accompany him?Did you have any extra physical activity before?However, proof again, to see if it is repeated and problem solved.

To all a kiss and have a good day.

Velia's profile photo
Velia
10/20/2010 6:44 a.m.

De los buenos tiempos, siempre quiero más...
Mamá de Ángela, ¡16 añitos, fiera!. Debut: octubre de 2003.
Bomba insulina Medtronic Paradigm Veo desde junio 2005
Última hemo 6.1

  

Hello, my name is Marta and I have a 2 -year -old boy who debuted on August 29, the truth is the Stoy passing it is very small and every time I have to prick it, I would have a very bad time, I would like to gain fathers and mothers with whom I couldTalk about this issue so unknown to my thanks.

lucialva's profile photo
lucialva
10/20/2010 2:49 p.m.
No signature configured, update it from user's profile.

  

Lucia, you have come to the right site.
There are many parents of diabetic children, of all ages.
I am the mother of a 16 -year -old girl who debuted at 8, but there are parents of children who have debuted being babies, even smaller than yours, so do not worry, that we will help you with your doubts and your fears.

Children are great, and give us lessons.They assume things much more natural than the elderly, so my first advice is that you try to avoid dramatisms and that you actually act and naturalness, not to load it with faults or complexes.

Health

DiabetesForo's profile photo
DiabetesForo
10/20/2010 3:52 p.m.
No signature configured, update it from user's profile.

  

UDANE DO NOT worry that we all seem sometimes gross dogs :)) :)) :))
On the subject of those hypos ... that I can tell you, the hypos really in such youngThey are in 200, with such young children the glycemia margins are higher, when those margins are growing and the endocrine is bringing them closer to Normoglycemia.

That is why I was one of those that I recommended to move the issue of insulin pump, the insulin pump in such young children gives very very good results because it allows to put very small amounts of insulin and much more tight than a pen or syringe,To get an idea with the pump you can put a bolus of 0.4- 0.7- 1.3 something that is impossible with the pen and with the syringe you leave your eyes and you have to make use of the imagination.With the basal the same passes the bomb allows to put as many sections as the child needs for his activity, that is, you can put a basal of 0.05 at the time, I think the pump I see of Medtronic allows to put a basal even smaller.In conclusion today the pump is what is closest to the operation of a pancreas.It is not the panacea but of course anything to do with the multiple doses with pen (the pen in babies is not used) only the syringe, I allow me1,2 .... because normally in babies the exact units are not usually used.In a baby a 0.1 or more 0.2 can be safe hypoglycemia.

One of the pump indications is that children have less hypoglycemia because you can better adjust insulin doses.

Udane really planted the bomb your life will change for sure, my daughter put it with 20 months, the doctor wanted to have put it with 15 months, but she had to convince me before;);););) You knowAguditis!

Mariape ​​I'm very happy that Adrián this best.My girl does not affect glycemia what I have noticed is that it affects her depending on which food I accompany him.

Patrice what joy to read you, that guay that in the school of your little one thereMy little one does not stay dining room because in principle I have not had need, as Anna I have always preferred to eat at home for the issue of control but everything will be walking.

You care to send you my email in a private and send me the list, my little girl's pediatrician goes crazy every time we get bad, he is very good person he always calls the hospital to facilitate the subject, but I could take himA better list than better.

Anna to us the theme of the honeymoon made us half crazy, I was one of those that said that I leave yaaaaaaaa, to my little I think it reminded that it lasted about 6 months.

Lucialva little by little he will get used to and as Alea says, he will give you a life lesson!These kids are incredible, little by little everything will be softened.Welcome!!!

Well girls lately I am worried, they have sent the little cardiologist to the little one, they already sent her last year (she had nothing) and now again, says the endocrine that whenever we are going there is a little tachycardic, she passes it from baby,Before his endocrine did not give importance because it seems that a baby his beats are always faster but now he is no longer so normal.Bufff have told me about a dopr (or something like that) I have not wanted to ask or investigate, they will look at it thyroid ... total that I am eating the jar, we have the visit on November 2.I really don't know if I want thatday or not.

A greeting to all

DiabetesForo's profile photo
DiabetesForo
10/21/2010 4:33 a.m.
No signature configured, update it from user's profile.

  

Thanks Alea and Lena I liked finding this site where there are people who know more about this that I hope to connect frequently

lucialva's profile photo
lucialva
10/21/2010 8:23 a.m.
No signature configured, update it from user's profile.

  

Goodaaaaaaas, welcome Lucialva x here you will find many support and many tips that will be useful to you x experience because I am new in this in this is what what do you have to do is ask anything even though it seems absurd to you lena muxo mxo encourageSurely that these PQS is that they don't let us breathe.We are in a stable period the more or less controlled school that was what worried us most and I think I can already say that this is assumed although there are days that it costs more than others.To take care of everyone;)

mariape's profile photo
mariape
10/21/2010 10:27 a.m.
No signature configured, update it from user's profile.

  

Mariape ​​I have already sent you the list, you will tell me if you receive it and it looks good that I have scanned it, Lena send me your email for a private whenever you want and send it to you too.
I see that usually the kids eat at home, it is that sometimes I did not arrive I had to choose between a school in front of my house or one that had to suffer traffic jams every day when going but had a nurse, of course chosen ISecond, sometimes between the work and my other son who is only 6 months old, I am overwhelmed at lunchtime, normally Alejandro arrives and in 15 minutes he does not go back to rest anything poor, that's why I consider whatTo leave him to eat but he is afraid.
Lucialva welcome you have gone to the best place, here we all understand each other perfectly because we have the same problem and you will realize the time that those who know and most understand you and listen to you are the people who live with diabetes.
You have how long, I tell you the same the downs and grunts I think we all have them after more than 2 years there are still days that I stop to think and I do not believe that my son is diabetic I get a lot of sadness but I because of what ILess attempt not to think about it, we have touched this and it is not worth regretting and thinking about the bad but in all the good our kids who are wonderful.I am with Lena, the best bomb, I think I am the last one that I have put it to my son and although at first I had a thousand doubts, but read Julio talks or so, I can tell you that now I do not change it for anything, its quality of life improves and you do not have to be so strict with meals or schedules, Alejandro since he has been eating a lot of things that with the syringes did not give them or crazy.
Well girls who claim my kids a kiss to all.

DiabetesForo's profile photo
DiabetesForo
10/21/2010 3:25 p.m.
No signature configured, update it from user's profile.

  

Good morning, Papis !!!!

Lucialva, welcome to the club ... As you see we are many mothers who are in the same situation ... Some with many years already of experience, unfortunately ... As you will see, the beginning is a bit chaotic, many new concepts, a radical life turn, but little by little everything returns to its channel, more or less ... encouragement and patience ...
Regarding the treatment, I am Pro-Bomba, we use it since 2005, and of course there is no better treatment until now, and of course the ideal for young children.Ask everything you want us to help you.

Lena, I understand that you are overwhelmed with the cardiologist, it also scares me when you have to do some "extra" ... but if you saw a specialist and discarded some problem I suppose that now it is the same ... you already tell us...Cheer up

Santesteba N, how are you going?

Yesterday we had a problem with the continuous meter, damn it!.. As today I went on an excursion, I put it on Wednesday, and the truth was working very well, but yesterday it gave him a transmission error (low transmitter battery), I had to remove it, load, and we'll see if it is that it is thatIt is defective or what happens to you ... for the moment it is measuring.

To all a kiss and good day.: D

Velia's profile photo
Velia
10/22/2010 4:57 a.m.

De los buenos tiempos, siempre quiero más...
Mamá de Ángela, ¡16 añitos, fiera!. Debut: octubre de 2003.
Bomba insulina Medtronic Paradigm Veo desde junio 2005
Última hemo 6.1

  

Very good,
He has not given me time to read at all.Welcome to the new moms, here you are at home and nobody like us to understand what you are happening.
Lena, pretty, who I have not yet tried the wipes, the catheters now do not take off with Jonhson oil :)) :)), but I am glad that you do well.I hope you do well in the cardiologist, you will see how nothing will be.
Velia, what moved, between meters and glucometers, cannot be calm.
Let's see if I spend more slowly.
Kisses and good Sunday afternoon.

DiabetesForo's profile photo
DiabetesForo
10/24/2010 10:25 a.m.
No signature configured, update it from user's profile.

  

Hello everyone,

I'm new here ...
My son to debuted 29 days ago ... He is 3 years old ...
I feel very green in everything and above all I am afraid ...
I am separated so I practically have all the load, I live alone with the Peke since I had a year.
A year and a half, Celiaquia and now diabetes ...
Today I especially feel very sad, I am afraid to see my son grow :(
I suppose it is normal but I feel insecure with the situation, now when I had controlled the Celiaquia comes to me this ...
I have read you for a few days but there are so many things that I do not understand what you talk about ... I understand that I can't know everything in two days but it gives me low to feel insecure in the care of my son.
The work, the house, the child ... all this without having anyone's help.Before it cost me and now I don't even tell you ... :(
At night I control at 2 and also at 5. In theory the endocrine told me that it was enough at 2 but with my experience (little) I have seen that with Nando (my son) it is better to control him more, it is very unpredictable andHe is able to get off 200 in one hour suddenly ... 370 has put himself in 70 in 50 minutes more than once .... I am frightened by finding it unconscious ... :(
I have 29 days that I barely sleep.
The character to the child has also changed a lot.Even after being the most strressed child of the park to a lonely child ...
I do not know if I am wrong with the rations or that but in a few controls it remains between 100 and 150 ... it is more than being low (between 50-80) or Alto (200-300).
When he goes to school 2 hours (it is what the endocrine recommended at the moment) he uploads a lot (in control of 11) and then low emphasized when eating ...

Do you know any website where can you see examples of menus for children by portions?It gives me the impression that its diet between Celiaquia and diabetes is reduced to meat or fish with boiled rice, pasta or potatoof fruit and point.Celiac bread is quite bad so I give it a few times .... Any idea?

The insulin bomb told me the endocrine that it is a royo because you constantly have to go program ... but because of what Leo seems to be fine ...

I will continue reading and learning, for that we are ...

Thank you.

A hug.

Sea

maruchi's profile photo
maruchi
10/28/2010 5:53 p.m.
No signature configured, update it from user's profile.

  

Hi Mar ... Welcome to the Club: D
Don't see how I understand you.I also separated when my little daughter was 1 year, when I was starting to lift the head, mood, labor and economically, they diagnosed the small type 1 diabetes, five years old had ... a sake, I think.How sad and alone I felt, even in the distance and with a very different personal situation I fill my eyes with tears when reading you or remembering ... but hey, here we are for something else, to encourage you, to tell you our experienceAnd you can see that yes, that fortunately our children can live well, make a rather normal life (not so much us that we have to always be at the foot of the canon, but you will see that over time, when you learn and control the treatment, you will feelMuch more relaxed ..... courage.
He is not the first diabetic and celiac boy who I know, in fact Oscar, son of some friends from a town here, debuted with 2.5 years, and at the same time they diagnosed him the celiacy, at first a chaos, in addition in the town there were no foodAdapted for celiacs, blessed Dmercadona, with their wide variety of products, I guess you know them ...
With regard to glycemic lack of control, I have also suffered inpropias meats, moreover, the control of the nights made me tremble, I never knew if I was going to find a 30 or 300 ... a little desperate, but before that I did not stayNever still.The insulins we used (rapid and slow insulin mixtures) were horrible and allowed us little or no freedom of schedules, apart from the 2 serious hypoglycemia we suffered .... so I got to work with the pump theme untilI got it .... You can't imagine what radical change.I do not tell you that it was hard for usAbout her and ask us what you want to know.
Finally, I will send you my phone in case you want us to talk.The early days are difficult, but everything becomes more bearable if you share it with who can understand you.

A huge hug for the 2 and I assure you that there is light after the tunnel.

Velia's profile photo
Velia
10/28/2010 7:44 p.m.

De los buenos tiempos, siempre quiero más...
Mamá de Ángela, ¡16 añitos, fiera!. Debut: octubre de 2003.
Bomba insulina Medtronic Paradigm Veo desde junio 2005
Última hemo 6.1

  

Hello sea, I'm too sea :), welcome.
My daughter also debuted very small, with 22 months, now she is 5 years old and is a champion.
I think Velia has told you everything.It is normal for you to feel lost now and everything seems so difficult ... but over time things improve.Children adapt to novelties much faster than adults, so surely he gets habituated to his new situation very soon.Noe also seemed sadder at the beginning of debuting, but everything happened.
What insulinas have given Nando?I also recommend the bomb, ignore what they tell you that it is a royo ... what is going, for the little ones it is the best treatment.
I also encourage you to continue with us, you vent, ask, ask ... here are many and many who live diabetes in our children's flesh.
Much encouragement and a hug.It has us for what you need.

DiabetesForo's profile photo
DiabetesForo
10/29/2010 4:48 a.m.
No signature configured, update it from user's profile.

  

Hello sea:

My son is also 3 years old, he debuted with 1 yearIt is a way of living and I assure you that you are not licking you all day.

Alejandro also has a bomb since July of this year, you ignore your endocrine, many times there are more economic interests in the issue of bombs than anything else, for such young children it is the best without a doubt, it allows you much more freedom of schedules andBetter control to be able to put amounts of very small insulin.It also happened to us that in the morning in the breakfast post I was always high and then towards hypoglycemia at the time of the food, I could never solve it until it has not taken the pump.

Regarding the theme of food for 3 years old I have ever got into places to see examples of menus and I personally seem to me that they put some incredible examples of food, my son does not eat all that or by chance and I assure you that it is fromGood eating, I can tell you what I give to mine but every child is a world, tell us how many rations you have to give, because I imagine that with the syringes or feathers (I do not know what you will use) and now at first you will haveA number of fixed servings in meals.

Well, as animate has already been told, now they are difficult times and in your situation I imagine that more but everything happens, enter the forum and tell us what you want, let off steam that we will help you in what we can.

A very big kiss

DiabetesForo's profile photo
DiabetesForo
10/29/2010 10:39 a.m.
No signature configured, update it from user's profile.

  

Hi Mar.

Here are another mother.
My daughter debuted somewhat older, with 8 years, but we have already been with diabetes and we are driving.

Celiacism, if you already control it well, you should not suppose any problem with diabetes, unless the hydrates that need to be without gluten.

I spend what for many of us is the best website on diabetes:

As for the insulin bomb, tell your endocrine that it is, by far, the best treatment for a diabetic child and, if you have doubts, to pass through this forum, that we will explain some things.
My daughter has a bomb and is a release.

Telling what area you are and we can better orient you.

For what you need, here you have us.I spend, like Velia, my phone, for any questions you have.

Health and a lot of encouragement, that you are no longer alone.

DiabetesForo's profile photo
DiabetesForo
10/29/2010 11:03 a.m.
No signature configured, update it from user's profile.

  

Hello breasts,

How good it makes me read them and how sensitive I wear!
What a joy we also deprive ... Tomorrow I start calling you all !!! :)

Hi Mar (Marcita), the insulins that nando are the fast and slow (Insulatard Flexpen and Novorapid) with syringe ... With the ball I directly did not go well, and that of not seeing exact that I entered I did not give me much confidence... the slow carries it in the morning and at night and quickly I almost never put it because it reaches under what would correspond to the first half unit of pattern they gave us ... it will be that it is on the honeymoon.... what a royo ...
At night he barely has the slow one because we put it at 6:00 p.m.

How good your words of encouragement ... thank you very much ...
What a shame also read my situations to mine ... how many children ... :(

Alea, thanks for the website, already add it to my favorites (one more ...).We are from Palma de Mallorca, they told me that Nando is the seventh child in every Balearic Islands that has diabetes and Celiaquia ... go lottery!Reverse clearly ....
Patrice, at first they also gave me some huge ration menus, and I just had a belly pain in the sofa ... I had to tell the endocrine to lower my servings or do what I wanted but that I could not take meAn anxiety attack every time the Peke Hast ate to eat everything and the child with a triplet pain ... in the end I have it and now I have distributed it like this:
Breakfast 3 portions
Snack 2 rations (also depending a little on how to glycemia)
4.5 portions food
Snack at 16.00 2 rations (also depending a little on how to glycemia)
At 18.00 I put the slow one and give him two pieces of fruit and 10 grams of bread to reach me at 20.00 (dinner)
Dinner 4 portions
I respond at 23.00 2 rations (also depending a little on how to glycemia, if it is high I wait for the control of the 2 to give it the milk (I continue with the bottle and thus suck and do not wake up ...: s)

That is ... and at food and dinner they tell me that I cannot exceed the 2.5 rations of pharinaceos, that is to say that the rest must complete with vegetables and the ration of fruit.

The bomb ..... I have to read a lot about this ... Do you bother you?How do you graduate?Can you eat without taking into account hydrates or at the end depending on what the child eats is increased manually? And to sleep?With what moves Nando I think I would end up the ground ...: S

By the way do you have an opinion about the patch that is said to come out?subcutaneous .... Jolin I hope .... but maybe it will be something else as the unchangers those who in the end did not work? ...

Velia, thanks for your private ... yes ... I know Mercadona's products a lot, Celiac paradise!It turns out that the owner's son is Celiac ... that it smells for the Celiacs ... how lucky for us !! ...
It is incredible as Nando's tastes have changed from the debut and how he eats now ... before the debut he could spend up to 1 hour by his side to have to dare or eat ... and the whole fruit or see it ... always withThe juices or liquefied ... and now in 15 minutes everything is eaten!And the whole apple with a face of happiness ... how it is possible that the organism change in this way ... that strong change ... in the hospital it was omonic and how is normal that Afonia changed the tone of the voice... Come on, among that, to see him climbing the closet to reach an apple, his aggressiveness and his humor changes I almost believed that he had lost my son, that feeling was horrible, I longed for my son and had it in front of him ...Now it is more but ... A changed, it is clear.
And yes, it is true that he takes it with more normality and acceptance than me ... I have moments when I tell myself: I am diabetic and hallucino, I can hardly even believe it, then I am invaded by aSadness, change of thought and I continue.I smile for him because he deserves it but inside me ... I feel sad ...
I think about the moment because I overwhelm myself thinking about tomorrow ...
The nights are terrible, exactly as you say "I tremble" for the controls of the morning, there is no routine in the values, a logic ... it is always a surprise and that is scary.

Thanks to all.
I will continue with great attention.

A kiss.

Sea

maruchi's profile photo
maruchi
10/29/2010 3:53 p.m.
No signature configured, update it from user's profile.

  

And a last question more for today ...
What prices have insulin pumps?
thank you.
sea.

maruchi's profile photo
maruchi
10/29/2010 8:48 p.m.
No signature configured, update it from user's profile.

  

Hi Maruchi! My son also debuted with 3 years (I see that we are many ...) and also carries insulin pump and continuous glucose meter.Once the initial learning is overcome, when you control the theme of the portions, which is nothing more than to look at how many carbohydrates have a food and divide it by 10, 10g of carbohydrates = 1 ration.The nutritional composition tables of food can help you, and of course the magnificent labeling of Mercadona products (I don't care to advertise them, they are the largest: d) Everything will be easier.I recommend that you try to keep a control pointing in a notebook daily what he eats, the type of food and insulin you put, as well as of course the blood glucose before eating and that of two hours later, for me that is fundamentalnot to feel lost and make the necessary modifications.
And of course, the insulin bomb, there is nothing better for children, and you endocrine, it makes me laugh, what happens that with the multiple doses do not make modifications?Whatever ... but if with children the changes are almost daily (oh! Do not be scared, that you will soon learn and go up or up the insulin you will do it with your eyes closed).Do you know what the difference is?Well, with the pump you will not have to sew your child to your child, you will not have to endure and wait for the next meal to correct that 300, you can put a temporary basal of 0% (we are going to stop the supply of insulin) and that you can overcomeA much faster hypo, because you also give him the basal to lower when exercising, in short, blessed are all the modifications that the pump allows.

mornita's profile photo
mornita
10/30/2010 4:59 a.m.
No signature configured, update it from user's profile.

  

Oh!I forgot the insulin bomb covering social security, as well as the monthly fungibles, we are going that if your endocrine access the child, it doesn't cost you anything at all, it is not very receptive, so they will advise you hereHow to change your endocrine, where are you from?
The continuous glucose meter is not covered by Social Security, well if you are lucky to live in Castilla La Mancha, yes, as I have been able to pay it, I moved from the city hahaha!

mornita's profile photo
mornita
10/30/2010 5:10 a.m.
No signature configured, update it from user's profile.

  

Finally I go here, it seems that I only turn to the forum when it is a bit crooked so that today everything is better, let's last.Welcome Maruchi here we are the breasts of the great fighters and asks that here they answer muxas better than the doctor himself, it is what the experience has.I have been only 6 months but this is like studying a career.I have advertising from the mercadona every time I see a new product without sugar I look glad, my little one has discovered the egg custards and is delighted, in addition the liquid yogurt (it shakes that there is only pineapple) is saving us.We are starting to take some control because it is more stable even though we do not get rid of any hicchead.Well, nothing greeting to all those fighter mothers and we'll talk

mariape's profile photo
mariape
10/30/2010 11:25 a.m.
No signature configured, update it from user's profile.

  

Join the Discussion!

To participate in this thread, please register or log in.