My two -year -old daughter is diabetic

Hello, I am Cristina, a mother of a two and a half year old girl who has recently diagnosed with DM1.

I wanted to tell our story a bit.My daughter had been asking for a couple of months at night, when she is a continent and before she endured all night.This was getting worse until a couple of weeks ago, who asked for pee every two or three hours and made a lot.He also started asking for water at night.I am a nurse and this made me suspect a bit, so one night I made a urine strip and the glucose came out very high.With this I was already clear that it was going to be diabetes, but until you go to the doctor and tell you ... well, you maintain a small hope.We went on the emergency room the next day and confirmed the diagnosis.It was a very large stick even "knowing it."That same day we were admitted to the plant to put the treatment, adjust dose ... I have to say that the positive part of all this is that when we realize so soon, the girl was very stable and the income has been very short.Also for my part, being a nurse, I am very used to putting these treatments, every day I am calculating insulin doses for my patients etc.So it has been relatively easy if we think that the knowledge of the disease I already have them.A week ago we went high and I think we are doing well.The girl continues with quite high glucose levels, but well I understand that they want to go carefully when adjusting doses.It always scares a hyper more than a hyper.Luckily, I think my daughter had a fairly varied and balanced diet and more or less adapts well to what you have to eat, even if we have to weigh everything you eat, etc.In the end it is being a change in our routines.Everything seems to be "good", the problem is that I am quite bad.I'm sad.The shock of the first days has already passed, but I am very sorry and I don't know how to manage it.I guess almost everyone who is here have gone through this.I do nothing but think that we have left the hospital, we are at home adapting, we do the best we can, but that this disease has come with us.This disease will be with my daughter forever.And no matter how much they tell me that the girl will not be limited and will be happy, I think this for her is a burden.And it will always be.And how unfair it is that such a small child has to have these concerns.I only think that children with this age have to enjoy, play, without responsibilities ... And unfortunately my daughter will have that limitation.I am so obsessed with the issue that I even feel bad when one day I like a chocolate in hidden, when I think Christmas comes and everything that supposes that in family meals.I don't know, I'm having a bad time.I just hope that little by little we see that the girl makes normal life despite her controls.And nothing wrote this here in relief mode, and to read some similar cases and see the light a little when thinking about the future.Thanks for reading me.

Hello Cris.I understand you perfectly because it is a whore, for anyone but more for a two -year -old girl.I started with 9 years, I have 52, all my life, I am a family doctor in C of Health so I understand you even more.

I know that this will not console you but think that the children who debut today have the "luck" of having many more means and more accurate and less limiting treatments than those who debuted in the 80s. Cdo I started the insulin was pork, then the, NPH Q were enslaving, the glucometers began, there were no sensors ... Anyway, within the bad, it is much less bad.I would like to have debuted with these means if my destiny was to debut.

This forum is wonderful, I am almost since that it started and we are a great family so I encourage you to go through it in CDO, for what you want.A strong hug.

Hello Cristina

Encourage, woman, your girl will be great and be very happy.For her there will not be a before and after.It will normalize insulin treatment because it is a baby.

The rebel stage will be in adolescence when the goal is to be part of the group and freeze with it, be all the same.But by then he will be used to and will be responsible for his treatment.

Today life is easier for diabetics, although I debuted 10 years ago and yes, I have a before and after, with a great change of life.But I have to say that I have taken it and I get along, although there are days to erase from the calendar.

Do not feel guilty, you eat your cake, your chocolate, your jellyle ... The girl has to normalize all behaviors, that there are things that will not be able to eat without her dose of insulin.And over time he will learn that some are not worth it.

Cristina, I know how you are having it because my daughter started with 5 years and the blow was brutal too, 30 years ago.At that time, NPH insulins and mixtures had you with your soul in suspense, day and night.

I went to the psychiatrist, because I had an anxiety that did not leave me or breathe.

He gave me Seroxat and Orfidal, and I balanced myself a lot.I had to be fine., I kept working because of that neither cume nor anything.

She barely affected her, she understood quickly and learned to use the fast for whims.The truth is that, with those insulins and the tendency to hypos, I ate everything.

With the change from slow to Toujeo, he almost forgot the hypos, and that leads a very active life, sometimes with visits of works and scaffolding.., He is an architect and loves to paint.At the moment the eyes and analytics remain well, without complications.Even good defenses has.Class never lacked diabetes.Of course, always with your sugar lumps in your pockets.

You have to go slowly, pointing doses, controls, hydrates .. seeing how it reacts.

You can give it Christmas sweets at food, with faster., .. I don't know how slow it wears ... there are more hydrates than others.

Quiet and slowly, little by little ... treatments and diabetes are not going to prevent you from having a long and happy life

A hug!

Hi Cristina, at first it is always a stick but a day will come when it will be normal and surely you will take it well.

Much encouragement, the girl is going to grow perfectly and will be as happy as any other boy.

I do not see it as a disease but as a metabolic disorder.

Not in ten years but surely in 20, when the problem problem, which is to deactivate the self -immunity is achieved, the perfusion and implantation of islets of lagerhams and beta cells will be common, together with the cancellation of the genes that express theAuto immunity.

So probably before 2045, young and with life ahead, he will be saved.

Until then, to take care of yourself and try to be happy as the most.

Cheer up!!!

A hug, you'll see that you can with it, you will make it great.

Thank you very much for your messages.

You have encouraged me a little among all.Reading your experiences I see that I am living right now is normal.I hope little by little to be more animated.

Look that I am familiar with these issues, I treat diabetics daily ... but when you live it from the other side you realize how hard it is, and more with a child.

These days we have been in adaptation house, they are being complicated but we carry it better than I thought.The girl is making it quite easy with the theme of the punctures, she likes to look at the glucose herself, with how small she is.They placed the free sensor2 and we are using slow insulin at night and junior humalog at meals.

It still continues to do very high peaks after intake (300 or more).They told us that we did not worry, every 3-4 days they call us and adjust a guideline, but I still see those high levels and overwhelmed me a little.

We have even deactivated hyperglycemia alarms because the day was spending the device.They have also told us that she will be a candidate to carry insulin bomb as soon as possible.

They want to do us training in a couple of months.

How do you see the bomb for such young children?

The glucose will be more controlled but perhaps everything that is the handling of the pump, is it more complicated than what we use now?

I have read a little of everything, but I think that in the end it has many advantages.

Greetings,

Surely the bomb will help a lot.And being so small will adapt very well. He will remove the peaks and will be more stable and controlled.

How slow do you have?With hydrates there are slower slows that are not good, but the slows of before, Lantus type, they tended more to hypos.

Sometimes the rapid action ends without digesting hydrates, and a slow flat does not metabolize anything, and the beak appears.

Other times it is because we have to wait longer between the fast puncture and the food.The most difficult peak to control is breakfast.

And you will have to increase insulin doses as it grows.They ask for it ..

Little by little you are learning.It will be easier with bomb and you can sleep calmly.

Uff, treatments are improving a lot.

Our nights were ... nothing calm.

@Crisg said:

Thank you very much for your messages.

You have encouraged me a little among all.Reading your experiences I see that I am living right now is normal.I hope little by little to be more animated.

Look that I am familiar with these issues, I treat diabetics daily ... but when you live it from the other side you realize how hard it is, and more with a child.

These days we have been in adaptation house, they are being complicated but we carry it better than I thought.The girl is making it quite easy with the theme of the punctures, she likes to look at the glucose herself, with how small she is.They placed the free sensor2 and we are using slow insulin at night and junior humalog at meals.

It still continues to do very high peaks after intake (300 or more).They told us that we did not worry, every 3-4 days they call us and adjust a guideline, but I still see those high levels and overwhelmed me a little.

We have even deactivated hyperglycemia alarms because the day was spending the device.They have also told us that she will be a candidate to carry insulin bomb as soon as possible.

They want to do us training in a couple of months.

How do you see the bomb for such young children?

The glucose will be more controlled but perhaps everything that is the handling of the pump, is it more complicated than what we use now?

I have read a little of everything, but I think that in the end it has many advantages.

Greetings,

Maybe the bomb gives you peace of mind and greater stability for the girl's age.In my case I do not want it but I already say that I am an adult.

Crisg said:
@Crisg said:

Hello, I am Cristina, a mother of a two and a half year old girl who has recently diagnosed with DM1.

I wanted to tell our story a bit.My daughter had been asking for a couple of months at night, when she is a continent and before she endured all night.This was getting worse until a couple of weeks ago, who asked for pee every two or three hours and made a lot.He also started asking for water at night.I am a nurse and this made me suspect a bit, so one night I made a urine strip and the glucose came out very high.With this I was already clear that it was going to be diabetes, but until you go to the doctor and tell you ... well, you maintain a small hope.We went on the emergency room the next day and confirmed the diagnosis.It was a very large stick even "knowing it."That same day we were admitted to the plant to put the treatment, adjust dose ... I have to say that the positive part of all this is that when we realize so soon, the girl was very stable and the income has been very short.Also for my part, being a nurse, I am very used to putting these treatments, every day I am calculating insulin doses for my patients etc.So it has been relatively easy if we think that the knowledge of the disease I already have them.A week ago we went high and I think we are doing well.The girl continues with quite high glucose levels, but well I understand that they want to go carefully when adjusting doses.It always scares a hyper more than a hyper.Luckily, I think my daughter had a fairly varied and balanced diet and more or less adapts well to what you have to eat, even if we have to weigh everything you eat, etc.In the end it is being a change in our routines.Everything seems to be "good", the problem is that I am quite bad.I'm sad.The shock of the first days has already passed, but I am very sorry and I don't know how to manage it.I guess almost everyone who is here have gone through this.I do nothing but think that we have left the hospital, we are at home adapting, we do the best we can, but that this disease has come with us.This disease will be with my daughter forever.And no matter how much they tell me that the girl will not be limited and will be happy, I think this for her is a burden.And it will always be.And how unfair it is that such a small child has to have these concerns.I only think that children with this age have to enjoy, play, without responsibilities ... And unfortunately my daughter will have that limitation.I am so obsessed with the issue that I even feel bad when one day I like a chocolate in secret, when I think Christmas comes and everything that supposes that in family meals.I don't know, I'm having a bad time.I just hope that little by little we see that the girl makes normal life despite her controls.And nothing wrote this here in relief mode, and to read some similar cases and see the light a little when thinking about the future.Thanks for reading me.

Hello again

I am very good to read your answers to cheer up a little, we are spending a few regular days ... it is taking cortisone by bronchitis and glucose is through the clouds.We try to lower it by increasing dose but it does nothing, it reaches 450, 470 ... again they tell us not to worry, that it is four days.But I notice that you are not always, the peppers are already escaped in bed.I am very worried to see those levels.Well, I suppose this when we spend later it will be easier for us to control it.Everything is happening to us.

Remaking this, the girl is fine.A little more accustomed to treatment.We also with the whole issue of meals and counting rations.We have a little increased the rapid insulin, the slow time (we use lantus)

Thank you all, I'm going to read

Many encourage @crisg 💪💪💪

I wish you the stage to pass soon and you can have good parties!

@Crisg, corticosteroid treatments are difficult.My daughter had some asthma and those days had to put extras quickly.

Surely the slow one would also have to increase it, but for a few days it is fixed with the rapid.

If you see that it continues to wake up high after the treatment, we will have to go up slowly, because at the beginning that honeymoon passes with very little insulin but is running out.

They will already tell you how, half units are much noticeable in children

Little by little you will be you who make decisions about insulin.

It's all to observe and learn.

But calm.

While I am with corticosteroids, there is little to make myself, more than correct with fast extras.Ask the pediatrician if the use of oral corticosteroids is really necessary and if it is, the shortest possible time.Raise a barbarity.I am very reluctant as there is no remedy.And while that, correct.There is no other, so try not to overwhelm you too much.A hug.

Hello Cristina.

You have commented that they are telling you when you should vary insulin doses.Have you not given you any protocol to modify insulin doses?

The two most important advances in diabetes have been: insulin and self -control.

They should give you a lot of training, knowledge is the most important thing in diabetes.

On the subject of the bomb, I am with the companions, for your daughter it would be a very good idea to take it ... if you have options to choose.There are pumps without catheter (I do not know if in children, having the smallest arms, they can be put) and that are "closed handle".This is very important, it is the future.

I personally do not want any pump until they are small and with an algorithm that allows them to be self -sufficient.