I have denied the bomb

@Mikel01 said:

Hello everyone,

I need to vent a little and, above all, look for your advice.
I debuted almost 20 years ago, and I have been clicking with feathers all this time, but in recent years my control has worsened a lot (7.5 my last glycosylated), partly because of the sudden glycose descents that I have suffered by injecting the insulin.

It happened to me several times, both with the basal (Tresiba) and with the rapid (Apidra): at 20 minutes of clicking, the glucose collapses.I have concluded, like so many others in forums like this, that insulin has gone to a capillary.I know that endocrine say that this does not happen, and that most diabetics have never happened to them, but it happens, and it is dangerous.This generates so much fear that I started clicking the fast after eating, which causes me glucose peaks that I know are not good, but at least I do not have panic to unexpected hypoglycemia.

For this reason, because of the impossibility of finding the key with the Tresiba (if I upload it, I lowI requested an insulin bomb.However, in the consultation they denied it.They told me that what I told them was "impossible" and that, as I did not prick me correctly, I was not an adequate candidate.

The most frustrating part is when they tell me that yes, that the pump is the best possible treatment for diabetes, but that they do not give it to me.
Well, more frustrating it is perhaps that they tell me what happens to me, it can't happen.I show them the graphs on the mobile, and nothing, which is impossible.

It seems that my experiences as a patient, who fit perfectly with what the pump could solve, are not being valued.
I have attended the Diabetes Association of my city and have flipped me to denie it.

I would like to know if someone else has happened to something similar.Have you denied the insulin bomb even though your situation meets the criteria?What options do they have?Do you have any experience with patient care service in Osakidetza or other communities?
Is there anyone who has acquired and managed it privately?(the model that is)

Any similar advice or history would be helpful.

All the best,

Hi, Mikel.

I had many fights with health, many.Once I arrived in Management with a backpack, ready to lock myself there until they attended me, I didn't need to have one night left.It is exhausting.The times that they will have told me "that does not happen" ... it bursts me ... they call you a liar to the face and remain so panchos.My case had nothing to do with diabetes but deep down.

I would make a claim in patient care.And if you don't like what they answer, to Management.And if you do not like what they answer you request a hearing with the manager (letter certified with acknowledgment to management briefly exposing the case and requesting a hearing with the manager to tell it in person), you explain your situation with peace of mind, calmly and look for a way of saying without saying and without it sounds threat that you will go to the media (it was a advice that the lawyer gave me the lawyer."BLABLOBABLÁ because I am so desperate that one day I will make madness and I would not like to end up being the typical case that opens news ...", or something that you can think of, that it is very ambiguous, that it is neither directly nor threat but that lets you know that you are willing to do everything (if you are, of course 😅).

I do not understand why he races at something that saves suffering and money, I will never understand.Much encouragement.If there is something that can help you, do not hesitate to tell me.All the best!

@Mikel01: The cost of the pump compared to that of the insulin bolis per patient is very high.

To obtain a bomb in my community they prioritize young people with very uncontrolled diabetes and especially people with other important associated pathologies.

I was a time in private health (Adeslas) and they didn't even know what an insulin bomb was, obviously because of the cost they would have to assume.

If hypoglycemia are afraid of you, I can assure you that people who carry bomb also have sugar declines.

I attach some publications by Serafín Murillo about hypoglycemia in case they can help you:

Link

Link

Link

You can also review your injection technique with your nurse to see if you are doing something wrong that can explain your sugar descents.

Mikel01 said:
@Mikel01 said:

Maguina said:
Maguinasaid:
@Maguinasaid:

I do not understand why he races at something that saves suffering and money, I will never understand.Much encouragement.If there is something that can help you, do not hesitate to tell me.All the best!

Thank you very much for your comment.The truth is that I hate the confrontations and I have a bad time having to put me serious (or edge) with them, but I am willing to do everything because my life is going (quite literal, go).So I will continue fighting, and I sign up your advice.Thank you!

Already ... I also spend it badly ...

Ricki21 said:
@Ricki21 said:

@Mikel01: The cost of the pump compared to that of the insulin bolis per patient is very high.

Thank you very much for your message.
Actually I am not afraid of all hypos;If I get to 50 or 60 at 7 pm, when I no longer have fast in my body, I know that I go back without problems and obviously creates a certain restlessness but not fear.The problem is the hypos shortly to click on.And yes, we have turned the technique and injection areas, but there is either where to scratch there;Broken by quadrants, use 4mm needles, with and without pinch ...
Anyway, as I said before, I've been with this for almost 20 years;I know the heart theory but I think I need another treatment.

And with respect to the cost we could long and lying because one thing is what the pump costs and another what you stop spending on a patient who will delay the possible complications derived from this disease for better control of it.

However, what I said in my original message, I wanted to know if someone had paid it in particular;Not only how much can cost but technically possible.

For some reason my original message has been deleted?
I put it here again:

Hello everyone,

I need to vent a little and, above all, look for your advice.

I debuted almost 20 years ago, and I have been clicking with feathers all this time, but in recent years my control has worsened a lot (7.5 my last glycosylated), partly because of the sudden glycose descents that I have suffered by injecting the insulin.

It happened to me several times, both with the basal (Tresiba) and with the rapid (Apidra): at 20 minutes of clicking, the glucose collapses.I have concluded, like so many others in forums like this, that insulin has gone to a capillary.I know that endocrine say that this does not happen, and that most diabetics have never happened to them, but it happens, and it is dangerous.This generates so much fear that I started clicking the fast after eating, which causes me glucose peaks that I know are not good, but at least I do not have panic to unexpected hypoglycemia.

For this reason, because of the impossibility of finding the key with the Tresiba (if I upload it, it lowers me in the afternoons, if it bass it, I am high in the morning, impossible), for some more health reason, and because now I have a one -year -old daughter and I cannot afford unexpected hypoglycemia, I requested an insulin pump.However, in the consultation they denied it.They told me that what I told them was "impossible" and that, as I did not prick me correctly, I was not an adequate candidate.

The most frustrating part is when they tell me that yes, that the pump is the best possible treatment for diabetes, but that they do not give it to me.

Well, more frustrating it is perhaps that they tell me what happens to me, it can't happen.I show them the graphs on the mobile, and nothing, which is impossible.

It seems that my experiences as a patient, who fit perfectly with what the pump could solve, are not being valued.

I have attended the Diabetes Association of my city and have flipped me to denie it.

[[ERROR-TRANS]]Me gustaría saber si a alguien más le ha pasado algo similar. ¿Os han denegado la bomba de insulina a pesar de que vuestra situación cumple los criterios? ¿Qué opciones me quedan? ¿Tienen alguna experiencia con el servicio de Atención al Paciente en Osakidetza o en otras comunidades?

Is there anyone who has acquired and managed it privately?(the model that is)

Any similar advice or history would be helpful.

All the best,

@Mikel01 I have rejected the pump twice.They only give it in people with high variability that end in emergencies

, uncontrolled diabetes and women in gestation.And it also depends a lot on your endocrine.

Unfortunately, I don't see you in any of those cases.

I don't fear my hypos, I have products to recover.Especially at home, which is a comfortable and with everything by hand.

In my opinion, and if it were you, I would not put the rapid insulin dose at once, I would divide it into two parts, one before eating and another later, so you will not have hypoglycemia.And I would use the buttocks to inject that they are very slow absorption areas, it is highly unlikely to give with a vein or capillary.In fact it has never happened to me in 10 years.

@Ruthbia said:

@Mikel01I have rejected the pump twice.They only give it in people with high variability that end in emergencies

, uncontrolled diabetes and women in gestation.And it also depends a lot on your endocrine.

Unfortunately, I don't see you in any of those cases.

I don't fear my hypos, I have products to recover.Especially at home, which is a comfortable and with everything by hand.

In my opinion, and if it were you, I would not put the rapid insulin dose at once, I would divide it into two parts, one before eating and another later, so you will not have hypoglycemia.And I would use the buttocks to inject that they are very slow absorption areas, it is highly unlikely to give with a vein or capillary.In fact it has never happened to me in 10 years.

Thanks for the answer.Can I ask you if you talk about the Basque Country?

Unfortunately, I have already tried all that you say, and in the buttocks it has also happened to the Tresiba.I know that many, most have never happened to you, but many others do (in this same forum I have read several cases).

And I can do a thousand triquiñuelas to try to reduce the risk such as using an Iport, divide the dose into several injections ... Come on, do what a bomb would do but I with my hand and my bolis;It doesn't make much sense.

I live in Madrid.The bomb offered me for the planning of a pregnancy, later for a stage that I had of uncontrollable glucose several weeks.

Surely in October they will offer me again to be able to control the effects of corticosteroids of chemotherapy.

The Tresiba There are users who put it in two phases to control hypoglycemia and others have changed product.

I use Novorapid and Toujeo and as I said I have never caught capillary.Side use of the waist for the fast and the buttocks for the slow.Rotating a lot to avoid skin necrosis.I can no longer use the arms for lymphedema.