A year since my pancreas removal.

Good morning.
A year since my total pancreatomy.
The lack of pancreatic enclosures and digestions are overcome, but diabetes ... is another song.

How many Kreon Tomas enzymes ¿

@juanen, what insulins do you use?
How are things with you?
In theory it seems easier to adjust without pancreas, because you do not expose yourself to sudden hypos, but I don't know if there will be other problems ..

Good night @regina.
It is very complicated to adjust, not having pancreas.The digestions are erratic, the day you absorb well, what they inject you regulate you, the day that does not, it bites.

But good, we are learning day by day.

Well, you'll get to know and see what foods do you better.With pancreas it is similar, either
Digestions are so predictable and you have to correct.

Good morning @jesususar.
Kreon took.
35,000 breakfast with 5 rations of H.C
Lunch 2 of 35,000 with 4 rations of H.C
35,000 food with 6 or 7 rations of H.C
Snack 2 of 35,000 with 3 rations of H.C
Dinner 3 of 35,000 with 6 or 7 rations of H.C.

Juane and Regina thank you very much for your information is a pleasure to share experiences among us

Reunite how much you weigh?, Have you managed to gain something in this period, I weight 44 kilos and take Kreon
70,000 at breakfast
20,000 at lunch
70,000 in food
20,000 in the snack
70,000 at dinner
I have the feeling that a little more Kreon is missing, because sometimes it takes time to make the absorption
Slow 16 units in the morning and about 11 quickly throughout the day
Slow Tujedo and Fast Novorapid

Thank you so much

@Jesususar
According to my digestive doctor (Enrique De-Madaria Link the most important thing is to perform a solid feces and since I got the amount of Kreon everything is much better and I win kilos, 61Kg I am now at 65.7kg.
Toujeo 16 units at night
From Humalog Júnior, from 0.5 to a maximum of 3.5 units per food.
But well, my values ​​are usually between 180mg/dl and 140mg/dl throughout the day, for fear of bad digestion and hypoglycemia that cannot be traced.
Jesususar keeps in mind that Kreon is very important, but the mood and illusion is 90% of an optimal recovery.
I have only been diabetic for a year, for total pancreatomy and the first 8 months were frustrating, but although there are days of very bad digestions and severe decomposition, most are very good.

I.455,000 Kreon units per day.
Jesususar.250,000 Kreon units per day.
The difference is big.

Thank you very much juane for your information has been very useful, because sometimes you are only in decision -making.
Do you know how to contact the doctor who has treated you?
Except for the theme of Kreon that there is a lot of difference in the subject of insulin we are similar
Thank you so much
A hug and we continue in contact

My email is jjover1969@gmail.com.
If you want you send me your number and talk more relaxed.
Cheer up

We hope you are well and that your recovery has been successful.The removal of an organ as important as the pancreas is a serious procedure and we know that it has been a year of many challenges and adjustments.We wish you the best in your adaptation process and in your general health.Go ahead and maintain a positive attitude!

Hello, I have chronic pancreatitis and I don't have pancreas.So I'm almost like you between 35,000 and 70.00 U of Kreon.Kreon's laboratory has published that, as a base, 2000u for each gram of fat in the meals.There is even published a food guide with the fat that each contains.But it is in German.Here the gastros don't have much idea.To this day, none has known how to say Kreon I must take.In each person you must adjust.You know you are taking the right amount
Ada when the feces are compact and do not float.But, in my case, if I pass, I am very constipated.

Good night @amga.
The dose should not exceed 2,500 lipase units per kilogram of body weight per food or the 10,000 lipase units per kilogram of body weight per day or the 4000 units of lipase per gram of ingested fat.
My weight was 60 kilos x 10,000 units = 600,000 units daily.
I started taking 225,000 units per day and I did not increase a gram, daily decompositions, weak, decay ... until they changed my digestive specialist (Enrique De-Madaria Link am increasing the Kreon A:
• Breakfast 3 of 35,000 = 105,000 units, with 5 rations of H.C
• Lunch 2 of 35,000 = 70,000 units with 4 rations of H.C
• 35,000 food = 105,000 units with 6 or 7 rations of H.C
• Snack 2 of 35,000 = 70,000 units with 3 rations of H.C
• Dinner 3 of 35,000 = 105,000 units with 6 or 7 rations of H.C.
• Total 455,000 units daily ...
Today weight 65.7 kilos I feel strong, wanting ... and although I have days with decompositions and days of constipation, I feel a lot better.

Good disease friends,
Juanen_ I tell you a little above in 2005 I practiced a duodenapancreatectomy cephalic to whiple, (piece of duodenum, pancreas head and a piece of stomach) in 2006 after a year just a total residual pancreatomia with liver hepatic anestemosis, let's goThat they took me almost everything, (pancreas tail, spleen, gallbladder etc etc) with all this panorama they incapacitated me for the trade that I had (mason) I started with Kreon 10,000, 40,000 at each meal three times a day, ended 70,000, beforeIf you move to 35,000 here I changed the guideline to 4 capsules each meal, 140,000 to each meal 3 times a day.
I lead a life with good quality but I had a very well headed my head because at the beginning it turned many times, to all this diabetes we are trying to improve it day controls the endocrine every 4 months and sometimes I improve and sometimes not, but not, butWith joy, I don't carry any diet, I don't take sugars and I have a good life.
61 years
84 kg.
1.69 m.
Last glycosilada 8.2

Good evening @Juanma.62 and Peña Descancreada.
Thank you for joining and telling us your experiences.