Total pancreatomy.

  
juanen_
11/10/2023 1:03 p.m.

Hello everyone, my name is Juanen_ and it has been a while since I follow you.
Now I decide to intervene because I feel accompanied and understood.
You will see, for more than 20 years I had been suffering acute pancreatitis, then referred to Chronicle and 5 years ago the first intervention took place in which I was removed from the pancreas, spleen and gallbladder.
I was very lucky since the head of the pancreas (the only thing I had left) continued to control the glucose perfectly, I just had to start taking digestive enzymes through mouth to help digestion.
Earlier this year everything was twisted, the periodic tests indicated that what I had left of pancreas was already affected and had to reopen to remove it, in addition the duodenum took ahead, part of the stomach and part of the intestine.
7 months ago, physical recovery has been good but sequelae are important.
I have lost a lot of weight, the digestions are unpredictable and although they are not annoying, the reality is that I have never guaranteed the absorption of nutrients so I have head with the issue of insulin.
Where I live there is no specialist who knows this and the instructions I receive are contradictory to the point of recommending to half the amount of HC that consumes to reduce the dose of insulin to inject.Taking into account that I have lost 10 kilos, I think this solution is not adequate.
They do not know where to take me and cannot establish the ratio.
I have seen that in your forum there are people in my same situation and I would like to exchange impressions with them.
I thank you for the work you do, it helps me a lot.
Thanks, from heart.
Ah !!You are all champions.

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isabelbota
11/10/2023 3:43 p.m.

@juanen
Hello, I cannot help you but I want to welcome you to the forum and wish you to find the support and help of those in your same situation.Much encouragement.

DM 2 con páncreas agotado desde diciembre 2020. 51 años entonces.
HG diciembre 2020: 15.9. Última HG: julio 2024 5.8
Abasaglar 9 unidades. Metformina, 1000/0/1000. Humalog junior: 2 unid en desayuno y luego en función de lo que coma.

  
juanen_
11/10/2023 3:58 p.m.

Thank you.@isabelbota

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Sandman
11/10/2023 4:30 p.m.

juanen _ said:
hello everyone, my name is Juanen_ and has been a while since I follow you.
Now I decide to intervene because I feel accompanied and understood.
You will see, for more than 20 years I had been suffering acute pancreatitis, then referred to Chronicle and 5 years ago the first intervention took place in which I was removed from the pancreas, spleen and gallbladder.
I was very lucky since the head of the pancreas (the only thing I had left) continued to control the glucose perfectly, I just had to start taking digestive enzymes through mouth to help digestion.
Earlier this year everything was twisted, the periodic tests indicated that what I had left of pancreas was already affected and had to reopen to remove it, in addition the duodenum took ahead, part of the stomach and part of the intestine.
7 months ago, physical recovery has been good but sequelae are important.
I have lost a lot of weight, the digestions are unpredictable and although they are not annoying, the reality is that I have never guaranteed the absorption of nutrients so I have head with the issue of insulin.
Where I live there is no specialist who knows this and the instructions I receive are contradictory to the point of recommending to half the amount of HC that consumes to reduce the dose of insulin to inject.Taking into account that I have lost 10 kilos, I think this solution is not adequate.
They do not know where to take me and cannot establish the ratio.
I have seen that in your forum there are people in my same situation and I would like to exchange impressions with them.
I thank you for the work you do, it helps me a lot.
Thanks, from heart.
Ah !!You are all champions.

I have an acquaintance who was removed from a large part of the pancreas, but in his case he has not had any diabetes problems.In fact, doctors do not believe that they have not affected him at all.
Of course, the issue of meals has it regular for what you say about digestions.

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Carussa
11/10/2023 9:29 p.m.

@juanen_ I can't help you either, but I also want to welcome you to the forum.
Hopefully someone can clarify your doubts.Cheer up.

DM1 desde octubre de 2019 | Toujeo + Fiasp | FreeStyle | febrero 2023: HbA1c 5,9

  
juanen_
11/10/2023 10:21 p.m.

Thank you.@Carussa

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Regina
11/11/2023 7:05 a.m.

@juanen, welcome!
I guess they have prescribed insulin, slow and fast.
Look, each diabetic is a world, it all affects us differently and, in the end, it is ourselves who find the best treatment.
You can put in the firm the insulins you use, to see if we can guide you something.
The sensor helps a lot.
Surely some meals will be better than others.
You will have to start with light meals, without fat, but in the amount that is enough.
Little by little you are adjusting quickly.
Points what you eat and the values ​​two hours later.
The slow one, you know that it fits according to the values ​​when awakening.
You have to be very patient with this
Much encouragement, which is getting.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  
juanen_
11/11/2023 12:57 p.m.

Good morning @regina.
Of slow insulin the toujeo, 15 units, which increases according to need.
Of fast insulin Humalog, administered according to my criteria ... This is more complicated, the problem is that after an operation like mine, the internal stabilization process is around 6 months.This means that during this period my body produces extra glucose and insulin guidelines are higher.Now my body produces less glucose and this together with digestive problems derived from the operation and that are permanent and unpredictable, makes my need for insulin be reduced considerably.
The endocrine and nutritionist really do not know how to guide me properly, since my tendency to hypoglycemia is high.On my own I told you treatment with 1/2 units feathers and I was prescribed Humalog Júnior, which caused me more doubts since observing administration and posterior reaction I realized that sometimes it seemed that they would not have injected any insulin and other timesWith that same 1/2 unit I had enough.I have proven the amounts that come out of the pen and I see that they are not reliable.At small doses the precision of the pen decreases considerably.
I am considering asking the endocrine to deal with the conventional, road and syringe method, and thus be able to start from scratch and reach real conclusions about my guidelines.

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Regina
11/11/2023 2:48 p.m.

@juanen_, it also seems to me that for half units the syringes are more reliable.If you need so much approximation, they will be safer.
I think that little by little you will get it, you have to give time to stabilize the body and know the trends.
You will see that little by little you get it.
These insulins are very reliable, the toujeo is quite stable and safe to stop the hypos with few hydrates
.With that interest you put, you'll see how you control it.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

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