Hello everyone !!Let's see if someone can give me some information until the endocrine see my son.He has diagnosed DM1 since the age of 9, now he has 25, but it is a bit "special" we have spent years without insulin, and for a year and a half, we have needed insulin again.In a review we had a new endocrine, and he told us that it was not possible for him toThey specific for diabetes.I have the results and there is a figure that has put me on alert, ac anti gad64/k has left 2000 u/ml when the reference is 5, of course, it has 3 asterisks in its result.If he is so high, do I have to take him to see his header?I have been stone.The glycosilada is "good" 6.8 I have to do something !!! ???Thank you so much
No signature configured, add it on your user's profile.
That result relapses that it is diabetic.
GAD antibodies are, among others, those that attack the pancreas and destroy the beta cells produced by insulin.
Those years will have been without insulin because it is lada type, your body generates insulin while it is attacked until it cannot more, and glycemia values are triggered as an effect of the end of insulin generation.They explained it to me.
If with the current insulin guideline it goes well, you don't have to do anything.Wait for the endocrine appointment and look to see that face puts you the new one :)
Lada enero 2015.
Uso Toujeo y Novorapid.
Well probably before, I was not well diagnosed!But the important thing is that it has a reasonable HB and has it under insulin control.
As you are young, you will have to ask the endocrine to ask for glucose sensors (in Spain they recipe free freestyle) to control blood glucose.An option in the medium term to think for young people is insulin bomb.But I can't tell you anything.There are people who adapt and others who are not.In general, in general, young people are good.But each person is a world.What is clear is that the sensor will be very good.The pump option is complex.But it is not bad that you do not forget it in case I get worse with the Bolis system.You never know.
All the best
DM1 desde Marzo 2018 (53 años). 7-10 unidades basal: Abasaglar (insulina glargina). NovoRapid. Factor 1.0/1.5.
Vivo en Alemania. CarboH total dia 70-80 gr. Deporte Gym todos dias L-V 1h-2 h
HbA1c 5,5% (Abril 2022)
Dexcom G6
Hello, thank you very much.My son has already been the sensor for a year, it is a relief not to have to punctuate his fingers trope hundred times a day.It is well diagnosed from the first day (it has many autoimmune diseases) and has a thorough monitoring for 14 years, simply this new endocrine said that it could not be diabetic with the controls it has, and requested the tests again, and there they areThe results.I know what the GAD are and what he tells us (I had to learn to forced marches and now he is biochemist, so how things work within us, I have it clear) what worried me is the amount that has come out, because of5 to 2000 There is an abysmal difference, and I wanted to know if having those figures had to do something.Ruthbia, it will be great to see the face of the new one when he reads the analytics.Thank you very much 🙋♀️
No signature configured, add it on your user's profile.
Ness
02/10/2022 10:03 p.m.
Llavo 13 years with my little diabetic, and every day I still learn things (and what I have left to learn ... because this is a universe) ... but what accounts has left me completely out of time ...
I understood that with DM1, there is no way to avoid insulin treatment, since the pancreas stays a little bird and stops producing it ... there is the "honeymoon" (or that is what they have always told me), short period of periodwhere it seems that it works again, but it lasts little, and immediately requires insulin injection ...
Being several years without needing insulin and now return ... is it something that goes completely from the normal ... right ???
Peque de 13 años
DM 1 Desde 2009 (13 meses)
@Ness, more types of diabetes are known as it is investigated, or rather how autoimmunity acts.
Although children's diabetes is usually abrupt diagnosis, there are other times that is not so.
And what remains to know ..
Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20
I know, it is not normal, but our cases are never normal, we tend to get out of "the norm" but it is what has happened, after 4 years of depending on insulin, eating by portions, tropecientious daily readings etc. Well, he stoppedneed to inject insulin, yes, 4 controls a day, we continue eating with rations, all heavy and exercise, but his endocrine said "you will need insulin again, I don't know when, but you will need it" and so it was, a few years later... we started again.
Some speak of "pancreatic reserve" others that of the 3 parts in which "the pancreas 2 of them have been" pulling "until now, others talk about type 3 diabetes and I believe that, my son and I have a lotAutoimmune diseases (in fact he debuted for an outbreak of another autoimmune disease) we have;
Lupus
Chronic youth arthritis in systemic form
DM1
Vitíligo
Raynaud
Sjögren
Celiacía
He has tested positive for both hyper and hypothyroidism, yes, in both
He is under study because something happens in the liver, they still don't know what it is ..
And there is also some genetic disease
So with all that and what I have not written, I think that our immunities make our organs the responses a bit different from those of others, and therefore our diseases develop in a slightly different way
No signature configured, add it on your user's profile.
Ness
02/10/2022 11:54 p.m.
My mother Sharon ... if it is already difficult to be a mom ... You are the leader of all ...
Your life has to be a little madness ... With everything you have on top, nothing can be normal, surprise after surprise ... I hope there are more positive than negative ...
Much encouragement
Peque de 13 años
DM 1 Desde 2009 (13 meses)
@Sharon, autoimmune diseases are getting better and better and treatments are improving.A lot of patience and encouragement.
Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20
@Sharon Raynaud syndrome is not autoimmune and is treated with nifedipine, it is genetic.I also have it, a pill a day and protection of the extremities against the cold.Go to the rheumatologist and make a capillaoscopy to see the degree.
Unfortunately, autoimmune comes together, I also accumulated a few as many, more genetic but do not prevent me from making normal life like any other person.
Lada enero 2015.
Uso Toujeo y Novorapid.
I know that it is not fully self -immune, but it has a genetic component.My son is diagnosed with everything and the tests were already done, a long time ago.Ah !!And Ko can medicate it because interactive with other medications that are fundamental so that there is no misfortune
We make the life we can, because some diseases do leave sequelae and we must modify life, the reality is, within the limitations we have.For us it is normal to have multiple pathologies, we compete to see who you have more, who has the rarest, who will give more disability percentage ...
No signature configured, add it on your user's profile.
The secondary Raynaud is autoimmune, I do not know which one you have
No signature configured, add it on your user's profile.
I have the primary stadium after 40 years of illness.It is regularly measured with capillaoscopy.They do it annually to measure degradation.
And no, it is not autoimmune, it is not an attack of your body against yourself as it happens with diabetes or chronic autoimmune rhinitis.No antibodies are generated that attack you.
In Raynaud the capillaries narrow themselves through body temperature contrasts and cut irrigation, in my case it is in hands, feet, chest and face.It goes fatal until you recover the circulation and the reactivation is very painful.You run the risk of amputations if you spend hours without irrigation.
Lada enero 2015.
Uso Toujeo y Novorapid.
The secondary Raynaud is autoimmune, I already tell you that I do not know your case, but I do know mine and that of my son <img alt = "" class = "img-fluid mb-3" src = "https: //www.diabetesforo.com/Uploads/editor/d2/cwg4wy1h55lp.jpg "style =" max-width: 300px;
No signature configured, add it on your user's profile.
sharon said:
hello to everyone !!Let's see if someone can give me some information until the endocrine see my son.He has diagnosed DM1 since the age of 9, now he has 25, but it is a bit "special" we have spent years without insulin, and for a year and a half, we have needed insulin again.In a review we had a new endocrine, and he told us that it was not possible for him toThey specific for diabetes.I have the results and there is a figure that has put me on alert, ac anti gad64/k has left 2000 u/ml when the reference is 5, of course, it has 3 asterisks in its result.If he is so high, do I have to take him to see his header?I have been stone.The glycosilada is "good" 6.8 I have to do something !!! ???Thank you very much
Hello, my name was Luisa, and I was diagnosed 3 months ago with DBT ladthat initially for their values they have been prescribed.They gave me the option of waiting with medications and diet until it was exhausted and just starting with insulin, or preserving what would remain of the pancreas function starting immediately with insulin.For now I am doing well with the smoothness, which is slow insulin, once a day.I think that their glycemia values are not at such high levels you can wait for the doctor's office, I was in 150 fasting and 350 after the glycemic load (I do not know what that analysis is called in your country, in Argentina Icall like that).
It is a luck that his adolescence has passed without having to depend on insulin, now he can be more autonomous with his controls and medications.
One detail is that I was diagnosed with Lada the day before I fulfill my 58 years and for what I learned so far, many lada were poorly diagnosed as 1 or 2 because they have not made so many years that these specific antibodies are made.
Good luck and we hope to know how he went with his medical !!!
No signature configured, add it on your user's profile.
Hi Luisa, thank you very much for answering.My son debuted with 9 years, and for years he needed insulin, both fast and slow.Through food (it was very strict in that, all heavy, marked hours ...) and the sport managed to have good controls.Then he spent years without insulin, and now we have returned, he needs fast and slow, but it is true that true that he does not need much, slow 7 and fast 3 units, sometimes you have to rectify later, but it is well controlled.
Thank you really for telling your experience, because it helps me understand that there are other possibilities, and why it has not always needed insulin.Now to see what the new endocrine says, and I will remind you what the last time said when you see the analytics
No signature configured, add it on your user's profile.
@Sharon asks for average of the C peptide, there is the key to knowing the pancreatic reserve.
In a lada tends to zero over the years but there are people who last years and another 2 days.
I was type 1 and now lada.Use little insulin
Lada enero 2015.
Uso Toujeo y Novorapid.