Hi Daniela,
I will try to explain my experience, to see if it helps you a little, even though I think that when the rebut is so recent, it is like a duel to happen, emotionally you are not well, and it is difficult for you to encourage you from outside, you need to follow your own process.
My son is 10 years old and debuted on January 30 of this year, not yet 6 months ago ...
The first days and weeks were the worst of my life, I felt all day like you, super sad and angry with life for having chosen us (especially to him) to have to go through something like that, and cried through the corners thinking aboutAll the inconveniences that the disease would mean in the short, medium and long term.
But for the children we do whatever we need and take the strength where there are no, so I was gradually adapting to this reality, which is inevitable, on the other hand, and trying to manage diabetes as well as possible, reading a lot, reading a lot,and learning and informing me to the fullest.We would change for them, but we cannot, so the only thing we have left is to help them to manage their diabetes now, and teach them to do so in the best way in the future.
It also helped me see my son's attitude.He has never sorry, he does not complain too much (although he never feels like, obviously) and never ashamed of having diabetes, nor hides, and being able to see that he continues with his life of always despite diabetes, diabetes,It also helps.Seeing it like this day after day you realize that the way we live the parents and they are not the same.We care, we judge, value, anticipate, suffer ... they live more day to day and do not think so much about what is happening to them, or in the future that awaits them.
It is true what you say that there is no place for improvisation at meals, and for me the most difficult is still to find the midpoint between him to continue with his normality, being able to perceive his life like any child of his age, butat the same time control the disease properly.The balance between not being an excessively perfectionist but controlling the glycemia daily, is not easy, but it is true that, after the first 2-3 months, it looks a little better.
And life continues, although now you seem that you do not care or you can think of anything else.In my case, I have 2 more daughters, 12 and 6 years old, a husband and a job of responsibility, and I have to continue with all this, so there is no other to take the bull for the horns and collaborate with him to everythingIt goes as well as possible, with much love and love even though we are still saying and we are the first ones that we need comfort.
Give yourself space to vent, it is necessary, and you will see how you are gradually integrating it into daily life, as one more habit (however heavy and more complicated), and he will also get used to gradually and grow with it.
And finally, take care of groups like this, enter RRSS and you will realize the number of people who live daily with T1 diabetes, and learn a lot reading other people's experiences.
Much encouragement and for it!
Nuka
nuka
07/09/2021 12:13 p.m.
Hijo de 10 años con DT1 desde enero de 2021
Humalog y Abasaglar (noche)
Primera HbA1c tras el debut de 5,8% (Mayo 2021)
Freestyle Libre 2