{'en': "Desperate.I can't with this :(", 'es': 'Desesperada.        No puedo con esto :('} Image

Desperate.I can't with this :(

aletheia13's profile photo   09/04/2018 11:14 p.m.

Good night,

First of all I put a little in context everything, I present myself: my name is Laura and I am 30 years old, in February I was diagnosed with Diabetes type Lada Autoimmune (as they told me it is part of the type 1 diabetes).I have always been a person quite thin by Constitution, athletic and who has done a lotI have reduced meat consumption and increased fruit and vegetable consumption).I measure 1.75 and I have always weighed among the 55-57kg.Since the age of 12 I have psoriasis and since the 16-17 psoriatic arthritis (in addition to migraines from the age of 3 and headaches in clusters for two years, but the latter are not autoimmune diseases, although they are very painful and very desperate diseases).

Since they gave me the news, I have not had a specific professional that has constantly followed me.Every time I returned to consult I was a different person (8 times, 8 different people), one of the time the endocrine told me that I was referred to the hospital valuing and recommending the admission, what was my surprise that when opening the door of theI consult the hospital was that same endocrine, which told me that we saw each other better in 3 months because she still didn't know what to do with me.His star phrase when I told him that I came abroad to work (3 months) was "good, in France you also have very good endocrine that can monitor you."In France you need the health card, which takes more than 3 months to arrive (I should arrive in two weeks .. just before I leave, go), without the health card you cannot access insulin, for example (not even paying the€ 200 that costs).In fact, in the middle of the contract I made a trip to Spain to bring me insulin.

Until the last consultation, visit number 8 (06/14/18), I was not guided insulin, until that moment I had been with metformin (with enough hypoglycemia especially at night) but at no time have I been controlled.Very variable profiles (hyper and hypo) and increasing glycosylated hemoglobin.In that consultation I was paid 6ud for Levemir and "The fast insulin is already trying."

Since June I have won 8kilos, they can say that insulin does not fat but as I have changed the injection zone I have seen how it swelled (first the gut and now the legs), in fact I have the body full of "balls"From the first day I punctured me insulin, I continue to exercise (I go for a run and swim twice a week) and I have not returned to my usual weight, which I feel in a body that is not mine at all.And for a year the stomach's mouth zone has hurt a lot all the time.

But not only do I despair seeing myself in a body that is not mine, I have been exhausted to have to be duels every year for every new disease that I add to "my backpack", I despair me feeling sick and sad all the time.I don't know if you can help me.: _ (

*** Ah, as I have been reading experiences of people with diabetes, practically everyone has been admitted to the beginning to get control of their diabetes and learn to develop with it, I feel very lost with this and depress myself very much.

I am very sorry for the sheet that I have given you, thanks to who has read here.

aletheia13's profile photo
aletheia13
09/04/2018 11:14 p.m.
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Hello @"aletheia13"
What you tell is not of receipt: "Fast insulin is already trying you" leaves me speechless.
What community are you from?Can't you change doctor/hospital and tell your case?
In any case, it is rare to gain so much weight for insulin in a short time.On the contrary, at the beginning it is usually lost.And what swells the gut and legs is the first time I hear it.
I really can't help you.I think you should try to go to an endocrine as soon as possible, even if it is collating for emergencies.

aaandres's profile photo
aaandres
09/05/2018 10:23 a.m.

Padre de Andrés, 17 años. Debut: septiembre de 2011.
Levemir (30ud. mañana y 24ud. noche) y Novorapid (en desayuno, comida, merienda y cena 40ud aprox - 24HC/día).
Medidor continuo DEXCOM G4 desde julio 2014
Hemo: 6.2 (Sept. 2013), 7.0 (Dic. 2013), 6.9 (Marzo 2014), 6,6 (Junio 2014), 6,7 (Sept. 2014), 7,0 (Dic. 2014), 7,7 (Mar 2015), 6,9 (Jul. 2015), 7,0 (Sept 2015), 7,4 (Dic 2015), 6,8 (Mar 2016), 6,6 (Julio 2016), 6,8 (Octubre2016)... 7,0 (Mar 2018)

  

Hello!I am 28 years old and from the 15 type 1 diabetes. I think it is normal for you to feel like this at first, and more without someone with a clear guidelines for how to act.It is also more difficult to adapt to older changes.Apart from contacting a good endocrine or endocrine I think that in this forum you can find information that can serve you.Reference Keep in mind that glycemia before eating must be between 70 and 100 and 2 hours after eating can reach up to 140 (or being more flexible 180).Try to eat the same rations of hydrates at each meal until you get those levels and then you will vary (to avoid hypos and hyper).It is assumed that 1 fast unit low 50 mg/dl of glucose, but it is different in each person, you have to find out how it affects you.
The fattening does not have to do with insulin but with eating, if you eat well you don't have to gain weight (I was thin and remain thin).It may also be that your metabolism has changed (it is assumed that around 30 begins to be easier than before taking weight).The balls you comment if it is weird and I had never heard it ...

The same apart from endocrine you need professional psychological support to help you accept the new reality and gradually encourage you.It is hard but you can continue to enjoy life (sometimes even more than before), encourage!

Maritxu22's profile photo
Maritxu22
09/05/2018 11:49 a.m.

DM1 desde abril 2006. 33años
Tresiba:12-14
Fiasp a demanda
Dexcom G6

Última HbA1c: 6% (junio)

  

Hello!I am diabetic since the age of 15 (now I have 25) and I understand everything you tell.I was admitted 3-4 days when I debuted but the training they gave me was very poor.They marked me a basal and with the fast insulin they told me more or less the same as you, that I would see how I adjusted it.I have changed a thousand times of endocrine and that makes it very difficult to carry a good follow -up.The fattening has not happened to me but the "balls" happen to me on my legs and also produces a lot of rejection and shame and I can't find a way of making them disappear ...
In the end I think this is a rather personal battle and you have to end up tasting how we can disease.Much encouragement and we read!

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domlub
09/05/2018 5:53 p.m.
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Hello @"aletheia13 I am also diabetic type Lada what you have being quite identified, the truth is that at first I lost almost 30 kilo when I was diagnosed in 2014, with 49 years and now I have taken more than 25 kilos and there are noway to remove them if it is true that insulin fattens because it retains Ezucar, but that is not important you must go to a good endocrine that monitors you a diabetes and palates the appropriate doses for good and slow control, notIt is necessary to be admitted I was not an outpatient treatment.
encourage and forward

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DiabetesForo
09/06/2018 1:22 a.m.
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Hello!I think you have to start balancing the mood.Maybe you are doing well antidepressants and treat you a psychiatrist or family doctor, tell you how you feel.Once you are stronger psychically, you will surely find a better solution to the rest.
Remove pain is first, and find the cause of stomach pain, it may be anxiety or some medication, or an ulcer that can be cured with antibiotic, but that they look at you.
The balls you comment can be lipodystrophies by insulin action.Do not put it on the legs, put it in the buttock, which is much better and balls are not formed, and, the fast, in the gut.For those you already have, there is an ointment that dissolves them, I think it's called Tiomucase,
I think it would be good for a hospital days, where they treat you everything.Meanwhile, get controls to understand insulin.If you see that these balls are an allergic reaction to insulin, they can change it for another, that there are better.
Do not overwhelm with everything at once, sees solving things of one.Little by little you will find yourself better, but it is very important to stop depression as soon as possible.
Welcome to the forum!

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Regina
09/06/2018 2:22 a.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

Before knowing that I had diabetes, my stomach also hurt.It was a pain located between the two breasts.I went to the doctor and prescribed Almax and error !!!, I had diabetes.Being with high glycems, the abdominals hurt.I found out about that.
About the packages because no idea.Do not miss the time and consult your header.
Not everyone enters us.I have never been admitted by this disease.Nor do they all educate us in diabetes.Each community works differently.Try to be referred to an endocrine.I do not understand that you have passed through eight.I carry with it since I started.I don't have much to choose from.At first I didn't understand anything and over time even years I realized that I didn't do things right.By this I want to tell you that they do not teach us, but you can learn you, that sure :)

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Anaisabel
09/06/2018 5:01 p.m.
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I was not entered in January 2015, there was a flu epidemic and there were no beds.They gave me metformin at first and my stomach hurt a lot.They took it away from the endocrine and the pain did not turn me.
Education is fundamental but it is even more your mood.
I also carry a backpack and all I have autoimmune, without a cure and very heavy.
Ask for a center change and if you can afford it, at least, this sure is the same in time.

It is this forum there is a lot of information.I learned a lot here from what I know.

Ruthbia's profile photo
Ruthbia
09/06/2018 11:50 p.m.

Lada enero 2015.
Uso Toujeo y Novorapid.

  

Hello good, I am type 1 diabetic for 23 years, I know how you feel, although it caught me with 6 years and at that age you do not know anything ... but if sometimes frustrated, I have also been admitted to the13 years of age and quite serious, you need someone to really advise you and really worry about you.

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Samuel11489
09/09/2018 10:40 a.m.

DM 1 desde Junio de 1995
Humalog Kwik Pen D-T-N
Tresiba N
6.3

  

aletheia13 said:
good night,

First of all I put a little in context everything, I present myself: my name is Laura and I am 30 years old, in February I was diagnosed with Diabetes type Lada Autoimmune (as they told me it is part of the type 1 diabetes).I have always been a person quite thin by Constitution, athletic and who has done a lotI have reduced meat consumption and increased fruit and vegetable consumption).I measure 1.75 and I have always weighed among the 55-57kg.Since the age of 12 I have psoriasis and since the 16-17 psoriatic arthritis (in addition to migraines from the age of 3 and headaches in clusters for two years, but the latter are not autoimmune diseases, although they are very painful and very desperate diseases).

Since they gave me the news, I have not had a specific professional that has constantly followed me.Every time I returned to consult I was a different person (8 times, 8 different people), one of the time the endocrine told me that I was referred to the hospital valuing and recommending the admission, what was my surprise that when opening the door of theI consult the hospital was that same endocrine, which told me that we saw each other better in 3 months because she still didn't know what to do with me.His star phrase when I told him that I came abroad to work (3 months) was "good, in France you also have very good endocrine that can monitor you."In France you need the health card, which takes more than 3 months to arrive (I should arrive in two weeks .. just before I leave, go), without the health card you cannot access insulin, for example (not even paying the€ 200 that costs).In fact, in the middle of the contract I made a trip to Spain to bring me insulin.

Until the last consultation, visit number 8 (06/14/18), I was not guided insulin, until that moment I had been with metformin (with enough hypoglycemia especially at night) but at no time have I been controlled.Very variable profiles (hyper and hypo) and increasing glycosylated hemoglobin.In that consultation I was paid 6ud for Levemir and "The fast insulin is already trying."

Since June I have won 8kilos, they can say that insulin does not fat but as I have changed the injection zone I have seen how it swelled (first the gut and now the legs), in fact I have the body full of "balls"From the first day I punctured me insulin, I continue to exercise (I go for a run and swim twice a week) and I have not returned to my usual weight, which I feel in a body that is not mine at all.And for a year the stomach's mouth zone has hurt a lot all the time.

But not only do I despair seeing myself in a body that is not mine, I have been exhausted to have to be duels every year for every new disease that I add to "my backpack", I despair me feeling sick and sad all the time.I don't know if you can help me.: _ (

*** Ah, as I have been reading experiences of people with diabetes, practically everyone has been admitted to the beginning to get control of their diabetes and learn to develop with it, I feel very lost with this and depress myself very much.

I am very sorry for the sheet that I have given you, thanks to who has read here.



Do not despair ... I am from the lada guy ... I don't know if it will help you what I am going to tell you ... I am a diabetic from 27 and after the entrance, when they discharged me, they told methat they referred to the ambulatory that belonged to me and I told them no, thatI preferred to continue coming to the hospital and that it would treat me that I had been trying, and I have been with the same endocrine ... I don't know what community you are, but I think you have the right to choose specialist and center or hospital.
The second thing I wanted to tell you is the health card ..... for that you must go to INSS and request it with your ID, in a week you have it at home and for two years.

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maríajosé33
09/09/2018 1:24 p.m.
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Good night.I have a type 1 diabetes for 15 years always well controlled and if I have fattened at some times it has been for a treated hypothyroidism.But mine is something much more complicated than you have exposed.According to my allergolola I have an allergy to insulin protein.Do you imagine my situation?Every time I inject the insulin I notice as if they burned me inside, I put the entire red zone first and then purple, and I maintain the pain of each injection for hours, even leaving my entire leg or sore arm.And this for 4 years, and I only have antihistamines to alleviate the effects.Do you know any diabetic with allergy to insulin protein?Well, you already know one.But I am very clear that I get up and I will always get up with a big smile. ☺️

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colibriverde
09/09/2018 10:26 p.m.
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@Aletehia I am a 6 -year -old Mom of Tomi with DBT 1. He was not admitted, he was never intrado, and the first outpatient diabetology was a disaster and treated us very badly, I was crying from several consultations.When I changed professional, my diabetological education began, with a nutritionist, diabetologist, this forum and courses that I did and still doing, because education is permanent.When I was my son's diagnosis I started with a psychology, and I could stand up.I recommend you look for another diabetologist who goes to the psychologist, the emotional, who does not realize, handles us in day to day.And that you look for nutritionist, training, consult your doubts here, that although we all count our personal experience and we are all different, it contains and help, I learned a lot in this forum.Forces and up, always stand!

Dani Se's profile photo
Dani Se
09/09/2018 11:17 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

aletheia13 said:
good night,

First of all I put a little in context everything, I present myself: my name is Laura and I am 30 years old, in February I was diagnosed with Diabetes type Lada Autoimmune (as they told me it is part of the type 1 diabetes).I have always been a person quite thin by Constitution, athletic and who has done a lotI have reduced meat consumption and increased fruit and vegetable consumption).I measure 1.75 and I have always weighed among the 55-57kg.Since the age of 12 I have psoriasis and since the 16-17 psoriatic arthritis (in addition to migraines from the age of 3 and headaches in clusters for two years, but the latter are not autoimmune diseases, although they are very painful and very desperate diseases).

Since they gave me the news, I have not had a specific professional that has constantly followed me.Every time I returned to consult I was a different person (8 times, 8 different people), one of the time the endocrine told me that I was referred to the hospital valuing and recommending the admission, what was my surprise that when opening the door of theI consult the hospital was that same endocrine, which told me that we saw each other better in 3 months because she still didn't know what to do with me.His star phrase when I told him that I came abroad to work (3 months) was "good, in France you also have very good endocrine that can monitor you."In France you need the health card, which takes more than 3 months to arrive (I should arrive in two weeks .. just before I leave, go), without the health card you cannot access insulin, for example (not even paying the€ 200 that costs).In fact, in the middle of the contract I made a trip to Spain to bring me insulin.

Until the last consultation, visit number 8 (06/14/18), I was not guided insulin, until that moment I had been with metformin (with enough hypoglycemia especially at night) but at no time have I been controlled.Very variable profiles (hyper and hypo) and increasing glycosylated hemoglobin.In that consultation I was paid 6ud for Levemir and "The fast insulin is already trying."

Since June I have won 8kilos, they can say that insulin does not fat but as I have changed the injection zone I have seen how it swelled (first the gut and now the legs), in fact I have the body full of "balls"From the first day I punctured me insulin, I continue to exercise (I go for a run and swim twice a week) and I have not returned to my usual weight, which I feel in a body that is not mine at all.And for a year the stomach's mouth zone has hurt a lot all the time.

But not only do I despair seeing myself in a body that is not mine, I have been exhausted to have to be duels every year for every new disease that I add to "my backpack", I despair me feeling sick and sad all the time.I don't know if you can help me.: _ (

*** Ah, as I have been reading experiences of people with diabetes, practically everyone has been admitted to the beginning to get control of their diabetes and learn to develop with it, I feel very lost with this and depress myself very much.

I am very sorry for the sheet that I have given you, thanks to who has read here.

A fact for my part. I have 67 years and I am diabetic since the age of 26.

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cacharro
09/11/2022 11:35 a.m.
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In the end you will better control the disease than any endocrine, I only go to continue giving me the sensors and for the recipe for the analytics

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Rogerix
09/11/2022 11:51 a.m.
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