{'en': 'How did they live the diagnosis of their son and how are they today?', 'es': '¿Cómo vivieron el diagnóstico de su hijo y cómo están hoy?'} Image

How did they live the diagnosis of their son and how are they today?

Dani Se's profile photo   08/16/2017 9:57 p.m.

Hello, my daughter debuted on August 31 of last year with 7 years, it has been a hard year, we did not get stabilized every day is different, but there are her parents to take care of her pk she is happy and that is the important thing.Sometimes you think that you get tired of being all day from your sugar, whether it goes up a lot or if it goes too much and you can enter a hiccI would do my little without us.Much encouragement to all.

Marialuisa41's profile photo
Marialuisa41
08/20/2017 4:23 p.m.
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I agree with you, I think that little by little we will learn to live with diabetes of our son, with MiaridLantus, going to the garden, is exhausting!But our conclusion is that we cannot fall, we are the ones who have to hold Tomi .... And our great concern when all this was that he does not lose that very pretty smile that he has with so many punctures and so small.Now, at this time, I see him playing with his little sister two years older than him, and I think ..... I did not lose his smile, we have to happen to us either !!!

Dani Se's profile photo
Dani Se
08/20/2017 6:02 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

I agree with you, I think that little by little we will learn to live with diabetes of our son, with MiaridLantus, going to the garden, is exhausting!But our conclusion is that we cannot fall, we are the ones who have to hold Tomi .... And our great concern when all this was that he does not lose that very pretty smile that he has with so many punctures and so small.Now, at this time, I see him playing with his little sister two years older than him, and I think ..... I did not lose his smile, we have to happen to us either !!!

Dani Se's profile photo
Dani Se
08/20/2017 7:01 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

My daughter debuted with 13 years, now she has 15. My daughter has not lost her smile or a single day, after two years with this today she has not yet complained.So much my husband and I have been much worse, I still cry in many days.Those who have young children and you have not yet realized just tell you that they are real fighters.You will surely hear that ..... Be careful when they get to adolescence because they are revealed, it is clear that it is a difficult age, but not everyone reveals against their diabetes, my daughter has not done it, it is with a hemo of6.1 and with 5% hypos, yes, what leads us to the head are hormonal changes.

RocioLlinares's profile photo
RocioLlinares
08/21/2017 8:53 a.m.

Mamá de María. 15 años. Diagnósticada 05/06/2015
Humalog
Tresiba
@RocioLlinares
Última hemo 6,1

  

Rocío also follows me distressed, although the moment of the diagnosis was devastating ... when we started with the measurements ran X the whole house with 4 years and please asked us not to click ... terrible, and it was my husbandWho starts the controls with the glucometer, I could not.Today Tomi is fine, and it is still the same baby, I am getting anguTo always ask.Luckily or thanks to advances, there are currently more reliable insulins, Iport, meters, although some are not easy to access, I do not want to imagine 20 years ago.I think we have to be strong and if we see them well, always convey care, and as Leo said to live with diabetes and not for diabetes, hopefully we will do it !!!!

Dani Se's profile photo
Dani Se
08/21/2017 3:29 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

@"Dani76" When you learn to handle the fast one, you can eat everything in the meetings.

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Regina
08/21/2017 5:23 p.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

If food has no drama, eat but measured, the subject is the sachets full of candies, pacifiers, and kilos of sugar

Dani Se's profile photo
Dani Se
08/21/2017 5:25 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

@Dani76, I sincerely admire you, because my daughter debuted at a difficult age but because of the issue of adolescence, but in such young children I think that everything should be much more difficult ...... Regina is all reason, even theTheme of the chuches, count and that can take some and the other guard them for when they have a hiccup.It is difficult, we would like them to go from taking all that, but they are children and they must feel as such.

RocioLlinares's profile photo
RocioLlinares
08/22/2017 8:52 a.m.

Mamá de María. 15 años. Diagnósticada 05/06/2015
Humalog
Tresiba
@RocioLlinares
Última hemo 6,1

  

If Rocío is an issue, although he has 5 anise when he has birthday we are with, to teach him about food, which really adapts.But in the candy part and all that ...
Birthdays, at least in my country (are excesses of sweets), sweet tables, pacifier tables, tables of ... I never agreed but when I see it to Tomi and all the other children, if I am distressing, andI wonder why?What did we do wrong?What did we not do as potatoes?We always explain everything and talk a lot, but it is still 5 years old, and social life is so, pierced x food.

Dani Se's profile photo
Dani Se
08/22/2017 1 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

@"Dani76" I am in favor of children (no matter if they are diabetic or not) they are given as little as possible because they are very bad for health.But on special occasions it is fine to make exceptions, nothing happens because from time to time you eat little healthy things, the important thing is to do it well of most of the time.One thing is that at home you do not have sweets and do not buy an ice cream or a chuche daily and another that in a birthday cannot take what you want.
Simply tell the hydrates that carry the sweets that are eaten and you put the necessary insulin and that's it.And although one day is a little higher, it will not cause any problem, do not worry too much about that and that the child enjoys.
If sweets are brought to home, then you keep them for when they give it low or to give some occasionally and that's it.
When I was little in my house, they didn't ate sweets just, just to celebrate something.And it wasn't just because my sister was diabetic, it's that my mother didn't let me eat them either even if she wasn't because she knew they were not good for me.In the celebrations we ate them and my sister too, they put more insulin and voila.But we didn't eat them daily.
I believe that they are now too much and in the end that ends up taking its toll.Children get used to what they see at home, if the family eats healthy and only eats sweets for special occasions, they will see it as normal and are not going to ask them daily.It is important for any child who at home is taught healthy eating habits and then the days they go out to do what they want.As you grow, you will have to teach you to tell rations and adjust insulin.If one day he leaves with his friends, he can eat what he wants by adjusting the insulin and ready.
At first it is all very difficult but as you get used to you will see how it is better.It is a complicated disease to carry but it does not have to prevent you from doing anything, we simply have to strive more than the rest.

Yessica_A's profile photo
Yessica_A
08/22/2017 1:24 p.m.

DM1 desde 2003 | Toujeo + Humalog | FreeStyle 2 | HbA1c 5.5

  

Thank you!Reading makes me good!We did not make many changes in the food since before Tomi's diagnosis we had a very healthy diet, I agree with you in relation to the treats and the food at home, the question is, the insulin can pass it after eating ...It is difficult to know how many sweets are going to eat ... or I say that I choose, I count and apply

Dani Se's profile photo
Dani Se
08/22/2017 1:35 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

My daughter is happy only cries when she can't take chocolate ice cream but otherwise or a complaint for a year, she asked you to be happy and she tells me that if and that is what really matters to me for me, it is diabetes a greattragedy, I hope someday assume it.Greetings to all

Marialuisa41's profile photo
Marialuisa41
08/22/2017 1:47 p.m.
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@"Dani76" I think it's better if you expect.It will be high longer but nothing happens because it is something punctual and you do not risk that you do not want to eat everything you have chosen and give you a downturn.Having the Iport you can also put it several times.You can put a part when he starts eating (always calculating down just in case) and then depending on what you see that you eat really rectify and put the rest.As soon as you have the continuous meter you can see the glucose as many times as you want without clicking and you can control how it goes and if it no longer has a quick insulin effect and still high you put an extra and that's it.Do not obsess much either in the fulfillment because they will not be daily and because a while this stop nothing happens.
I have had many times 300 or 350 for eating more than I had calculated at some dinner with friends and nothing happens.You get another extra dose and it will go down.

@"Marialuisa41" I encourage your daughter.Children usually get used to adults better to any situation and do not stop smiling, play and be happy for that.I suppose that for a mother it is difficult, but do not think that your daughter will be less happy to be diabetic or will not be able to do the same as if it were not.It will cost you more than others to do many things but you can do them like the rest.Being diabetic I have not been less happy, rather it has made me stronger and more responsible.For many things I have tended to strive more, when the rest go without worry I have had to be aware of my illness, but that has not prevented me from enjoying it.

Yessica_A's profile photo
Yessica_A
08/22/2017 2:21 p.m.

DM1 desde 2003 | Toujeo + Humalog | FreeStyle 2 | HbA1c 5.5

  

Thank you, thank you very much!I learn a lot with everything they write to me and tell me.
At first if I was obsessed, now despite having doubts and some fears I am firmer in my decisions and safer !!Until September I don't get the Dexcom, I hope I can enter the country without problems ....

Dani Se's profile photo
Dani Se
08/22/2017 3:07 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

You have to look how low a fast unit, to be able to correct when they are high.In adults you can lower 50 glucose units, but in children it will be more, and half unit can be used.
@"Marialuisa41" If one day you feel dessert chocolate ice cream, look at the portions and calculate the fast dose.

Regina's profile photo
Regina
08/22/2017 3:25 p.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

Thank you very much Yesssica for your words we need to encourage each other pk a lot

Marialuisa41's profile photo
Marialuisa41
08/22/2017 3:35 p.m.
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Over there when we are on vacation, it is difficult for us

Dani Se's profile photo
Dani Se
08/22/2017 3:45 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

To get used to others eat things that he cannot, then when we losing a little fear of fast insulin, we went to snack and eat all the same, croissant, and we corrected.But at first we restrict it a lot, I think it is more our fear.As I have been with insulin, I have a notebook where we are writing down the meals units, measurements, we see how some meals fall!With the dexcom it will be easier !!!

Dani Se's profile photo
Dani Se
08/22/2017 3:49 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

Well, it is done, little by little you learn and the child will see that he can make a very normal life.Taking care of the psychological theme is also very important to adapt well to treatment.

Regina's profile photo
Regina
08/22/2017 3:55 p.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

You or your children who food or what do you know that they raise them a lot and try to avoid?To my son the fried potatoes ... no matter how little they eat, the values ​​fly

Dani Se's profile photo
Dani Se
08/22/2017 3:57 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

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