A humble advice

Jess's profile photo   03/15/2018 10:47 p.m.

Good night
I want to tell you some experiences that I live to the point of worrying.
I work in a hospital pediatrics unit and constantly see almost weekly diabetic debuts of children of different ages, from very small to teenagers.And you will think that this is my concern, but my concern is not this income but the diabetic decompensations that enter the plant between 10 and 14 years that are the most decompensated.
I tell you a very brief story in between.
Diabetics from the age of ten and 20 already of evolution.My first ten years does not take care of anything, I do not remember but a simple glycosylated hemoglobin well, the rest a disaster, a real horror, which today I wonder how I am still alive.I ate everything I could and I didn't want to prick the insulin.I cheated my parents to my doctors (tremendous illusion) and after a long etc.Not to get bored in a vicious circle that you cannot leave and everything that tell you the answer is to me it will not happen to me.Well, know that if they pass and that if you do not take care of the complications they arrive with 20 years oBackground in June and supposedly I had nothing I was perfect only some myopia and I went to a private clinic that derived social security to shorten waiting lists)
In November: Proliferative Diabetic Retinopathy Witter and operate hemorrhage.While I was waiting for my operation, my right eye was also bleeding so the left operated on me in days when I leave the operation and take off my bandage I said oh that I see perfectly and I had much hope my control from there was fabulous I lowered the hemoglobin15 to 5'4 imagine.But with the other eye I was not lucky, I waited for my operation for six months, I saw less and the blood took my eye more but my doctors said that I could wait and I introduced myself every week in the consultation saying that I could not expect thatI didn't see anything and a resident who saw me one day he told me that you had to operate urgently imagined the result, right?The bleeding had raised the whole retina and Wala after my operation I see nothing for my right eye, I think it spends days crying I do not want anyone to feel what it feels when you are 21 years old and they tell you that they feel it very much that it was expected a lot forThe operation, but that social security is like that (I feel the anger that I consider, that I know that it has been my fault, but if they had operated before it would have been saved) what hurts me the most of this is not that I have lost the vision of the vision ofAn eye, but I don't remember what it is like to see for two eyes, I have totally forgotten.(Although I do a totally normal life seeing only one).And after a few months if that was little crossed out loss of protein through the urine.Another specialist to visit and another serious problem to worry about.I say that I am 30 years old and that I am very stable from my eye and that I maintain a very small proportion of protein loss.Thanks to the good control that I carry and I have everything standing and stabilized.
With all this beating that I have given you I want you to see that complications are something that will happen but we take care of us.That one day is a day I don't know can become a routine.That we can lose ourselves to lead a normal life, for our unconsciousness, our ignorance, it will not happen to me.What if and when we want to realize it is something late
My advice is to moms and daddies: Diabetes is a very heavy backpack in itself.Imagine a backpack of that caliber for a child.Do not think because it is responsible to leave the whole backpack because I was responsible with everything but I could not with me.Support them, encourage them to take care of themselves.Give them tools for good control to be what prevails in theirlives.The shared backpack is lighter.I have seen moms in the unity angry with the world, even with doctors and is understandable, but his anger is an obstacle for his child to be a diabetic without complications.The health are not the problem.
To the rest of those who do not take care of one day is a day yes, but ten years as in my case it is an atrocity, it is very easy to carry good control, it is a matter of routine.There is a wonderful world to live and millions of things to do
Forgive me the beating, but seeing these children who enter and do not see the danger gives me a lot of sorrow and what awaits them for not taking care of themselves is not encouraging.
All the best

Jess's profile photo
Jess
03/15/2018 10:47 p.m.
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@Jess, diabetes is an everyday struggle, so at one time or another we can have a bad time, surely someone will identify with your testimony.Greetings

solaria's profile photo
solaria
03/16/2018 4:33 a.m.

Debut 46 â- 2012. DM1. Celiaquía e intolerancia lactosa. Anemia perniciosa.
MiniMed 640g + SmartGuard.

  

Welcome, @JESS, and congratulations for having managed to dominate the tiger.

Regina's profile photo
Regina
03/16/2018 9:48 a.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

@Jess Thank you for sharing your experience, welcome to the forum, I don't know if it's so easy to maintain control with routine or x at least as mom it is not easy for me, but committing to take care of yourself is very important!Welcome

Dani Se's profile photo
Dani Se
03/16/2018 2:22 p.m.

Soy DANIELA, mamà de Tomás de 8 años. Con tresiba 9u y lispro en comidas desde mayo 2017 . Iport y free+miao miao2 con xdrip y nigthscout .
Argentina

  

@Jess Much encouragement, at least you realize and now you take care of yourself and notes that with a good hemo complications are controlled and not advanced.
Out of curiosity, when you say bad control for 10 years, what values ​​are we refer more or less?
All the best!

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Maritxu22
03/17/2018 8:24 p.m.

DM1 desde abril 2006. 33años
Tresiba:12-14
Fiasp a demanda
Dexcom G6

Última HbA1c: 6% (junio)

  

Thank you "@regina" at least we try to be important.Congratulations to you also why you have had to do in the good control of your daughter.
Thank you " @dani76" with Ruitna I mean taking the habit of doing sports, sorrow or counting carbohydrates, not eating between hours, puncturing insulin.Not every day we can get up and do the same as the day before or glucose is the same, etc.Much encouragement that will surely teach your child to make it great and although it is not easy as the commitment will say will help to prime the good control every day
I admire moms as you for your daily struggle that I know is not easy.
Thank you " @maritxu22" Sii better late than ever.We talked about hemoglobins between 12 and 15. I read it and I am ashamed, but well I echo it is
Greetings to all.

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Jess
03/18/2018 10:58 p.m.
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Fuck ... Those hemoglobins were half between 300 and, 400 and peak, right?
I am glad to read that you have managed to improve and stabilize the situation.
I have been twenty -four years old with this and, for a while to this part, the problems occur for bad control give me a lot.Therefore, when I saw that my last hemoglobin passed eight - for a month and a half of lack of control that I had and I could not find the solution - I told myself that I had to lower it, and in those I am.
Good luck Jess, and to continue fighting.:

Alb85's profile photo
Alb85
03/21/2018 5:02 p.m.

- 32 años. Diabético Tipo 1 desde los 9 años.
- Tratamiento:
Tresiba (14 unidades)
Humalog (según actividad, glucosa, comida...)
- Mediciones: Accu-chek aviva y Freestyle libre

  

@alb85 continues in the fight that you will download it soon.You are the example that with 24 years of diabetes in the backpack without complications we can win the battle to our friend.Cheer up
Yes 300, 400, 500, 600 and the famous HI.
Now I see more than a 200 in the week in the control book and I am already worried: d looking for the causes ;;)
All the best

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Jess
03/22/2018 5:55 p.m.
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@"Jess" unfortunately you can't take time behind and correct the mistakes we made in the past, I'm glad you reacted and I hope you keep a good vision with the left eye and you can keep it with good control, there areAn @"ophthalmologo" registered, I quote it because surely he can guide you.I encourage this, this is like a boxing fight, life has given you a good blow and left you staggering, but it has not managed to fall, so now it shakes because it touches you to give a bite to life and eat you the world.But without neglecting diabetes.;)

Dalu's profile photo
Dalu
03/23/2018 9:46 p.m.

Papa niño 3 años diagnosticado julio 2017. Uso medtronic 640 con sensor enlite. Ultima glicosilada 6,3.

Diagnosticado noviembre 2019.

  

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