A "superhero".This was described by a group of London filmmakers who came to Salta to document the life of Tadeo, a 6 -year -old boy who fights a rare combination of unprecedented pathologies known worldwide.
Tadeo was diagnosed with hemophilia a in severe degree at birth.Two years later, type 1 diabetes (insulin -dependent) arrived at his life.Without a doubt, it is a picture that can only face a lot of courage, family support and proper treatment.
There are three axes on which Tadeo travels a happy childhood, despite the limitations.His attitude towards life, the maturity with which he assumes his condition, his desire to move forward and overcome themselves make him a true "superhero", as they already call him in some medical centers in Europe.
In the same way that various pathologies combined in their body, complicating a normal development, a group of people and institutions crossed in their lives to help him get ahead.And in fact, he is doing it.One of the most outstanding points of your Diario Transit is that today you can access a state -of -the -art treatment in Salta.The success of his recovery is such that Swiss doctors specialized in hemophilia of an Austria -based laboratory selected their case between thousands in the world as an example of life.
His dad, Alejandro slow, in dialogue with the tribune, said: "Until the hemophilia Salta Foundation appeared and through it we accessed advanced treatments, a medication such as factor VIII of the latest generation and to an adequate prophylaxis, the panorama was very complicated.the pair ".
Despite the achievements regarding a remarkable improvement in the quality of life and recovery, the child receives at least 150 punctures per week related to hemophilia and diabetes.
"With the new technology applied in the NUWIQ of 1,000 units, it must only be injected twice a week to treat hemophilia, in a quick and simple operation because the needle is finite. With the issue of diabetes, punctures to control insulin levelsThey must be done several times a day.
Together with Tadeo, Sofia, adapted family life to the disease."Hemophilia and diabetes have shaped our lives. Care should be done at night and day. My lady sleeps type 2 in the morning. I, type 1 and at 5 I already got up to perform the controls. I no longer need alarm clock.
Despite his young age, Tadeo faces the challenge of getting ahead with a lot of maturity.He learned to read his body."He knows how not to things," says Sofia.
He likes to play the play with his brother.It is very happy."Birthday parties are your favorites. But they are risky for him, in the sense that he feels so comfortable and so cheerful that he forgets everything, even eating, which modifies his glucose levels. That is the problem.
Football is another of Tadeo's passions.While he cannot practice it in a club, he does it with his father with whom he spends entire afternoons kicking the ball in the garden."He goes ahead with teamwork. His mother, dad, brother, theComplete family, doctors and school, where he now found containment, we formed a great team.I see him very happy with his friends, "Alejandro said.
The treatment
The medications are the fuel that allow to cope with the ailments of Tadeo and also of Matthew (13), his older brother, who also suffers from hemophilia.But the costs escape the budget of any family.Just say that each dose of octanate is around $ 10,000 and that of NUWIQ $ 20,000.
Children require, each, at least two weekly doses.At this point, again institutions with good predisposition were crossed in the life of the slow Saravia.In this case, the IPS covers the high treatment costs.Alejandro said: "For more resources that are available, dealing with such a treatment is impossible for any family economy. Without IPS we could not deal with this and without medications, it is not possible to continue."
The challenges
Tadeo's parents are searching to include diabetes treatment a less invasive operation.
The objective is to access new devices that will reduce the amount of punctures.The child currently receives 150 per week.
"We are going to continue as until now, one being the support of the other. If I had the possibility of choosing, I would choose Tadeo as it is," concluded his dad.