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"I don't know how I survived diabetes," said Tina, 48 (with diabetes from 6)

fer's profile photo   09/05/2016 9:59 a.m.

Tina lives in Copenhagen, is 48 years old and was diagnosed with type 1 diabetes to six, so she lives with the disease since 1968, when her mother injected her every day the insulin she needed with a glass syringe.

"I still remember the smell of alcohol in which the syringes were kept to avoid infections, at that time it was very difficult to live with diabetes," said Tina, who participated in the International Diabetes Meeting that was recently held in Copenhagen, Denmark, and to whichTélam agreed as the only Argentine medium.

The woman commented that when she was a girl "she had a very strict diet", because the long -term insulin injection that applied forced her to always eat at the same schedules.

“Injecting 42 years ago is not the same as doing it now: the long -term insulin that placed me every morning made my breakfast at 7, lunch at 12 and dinner every day at 18. He was a slave of theDiabetes, ”he recalled with regret.

Tina said that "in general people do not understand what it means to be diabetic: for a person with diabetes it was complicated even traveling to other countries, since the time change caused mismatches on applications and that had an impact on health."

“Luckily in the 80s the quick action insulin was invented and there my life changed completely.While I had to injepe from five to six times per day, I could make the meals schedules more flexible and go to lunch with a friend at 14, for example, something I had never been able to do, ”he recalled.

For tub projects such as studying, marrying or having children were almost impossible: “When I was little I thought I could not make a normal life, that I could not study a career or have children.But thanks to the advances in medicine I could do my career in economics and I have two wonderful children, objectives that until not long ago were difficult to achieve for a person with type 1 diabetes. ”

The woman, who currently uses an insulin bomb, said that living with diabetes today "is much easier."

“Today I have the insulin bomb and I no longer have to worry about the injections.While I must perform controls to maintain my levels in balance, I feel much freer and I can lead a life like that of anyone, ”he said.

And he completed: “I don't know how I survived diabetes and I don't understand how my family survived.More than 40 years ago being diagnosed with a chronic disease like this was almost insurmountable, but luckily today the perspectives are much better. ”

For Tina, awareness is a "very important" part when facing the disease, so he decided to share its history.

“When they invited me to the encounter I decided to come to share my experience so that people can identify and better understand what it is to live with diabetes.It is important to remember that in the case of type 2 diabetes there are many things that can be done to prevent it, such as performing physical activity and eating healthy, ”he said.

He added: "While there are factors such as the family history that we cannot modify, there are many others that we can work and the change depends on our own decisions."

"Bringing a healthy lifestyle is something we can choose and we must work," he called.

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fer
09/05/2016 9:59 a.m.

Diabetes Tipo 1 desde 1.998 | FreeStyle Libre 3 | Ypsomed mylife YpsoPump + CamAPS FX | Sin complicaciones. Miembro del equipo de moderación del foro.

Autor de Vivir con Diabetes: El poder de la comunidad online, parte de los ingresos se destinan a financiar el foro de diabetes y mantener la comunidad online activa.

  

The story of Tina fills me 48 years with diabetes and before it was more difficult now it is more comfortable and better insulin, that is, we can reach old men, which is my fear of not arriving, these stories are the k make me see what I can haveA future

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irene
09/05/2016 4:10 p.m.
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Irene said:
The history of tub fills me with hope 42 years with diabetes and before it was more difficult now is more comfortable and better insulin that is to say that we can reach old men who is my fear of not arriving, these stories are the k make me see that I can have a future

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irene
09/05/2016 4:11 p.m.
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The exceptions do not become general ... with this I mean that I am glad to read stories like that, but for having diabetes it does not make us exempt from other diseases .... today's treatments are not that they are milk but withMuch sacrifice, restrictions and discards you can have a medium quality of life .. I do not think about getting beyond tomorrow because you never know and as Rambo said to the question of how you live the answer is concise and clear more with diabetesDAY BY DAY.If people without diabetes of the years entail ailments in the diabetics The number of ballots is greater.

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LuVi
09/05/2016 7:07 p.m.

DMT1 desde los 12 años (1991)
hbA1c= 5,4

Humalog y Toujeo (mayo 2017)
Humalog y Tresiba (mayo 2016 hasta mayo 2017)
humalog y NPH (desde inicio hasta mayo de 2016)

  

luvi said:
exceptions do not become general ... with this I mean that I am glad to read stories like that, but for having diabetes it does not make us exempt us to suffer from other diseases ....today's treatments are not that they are milk but with a lot of sacrifice, restrictions and discards you can have a medium quality of life .. I do not think about reaching beyond tomorrow because you never know and as Rambo said to theAsk as you live the answer is concise and clear more with diabetes day by day.If people without diabetes of the years entail ailments in the diabetics The number of ballots is greater.

Luvi you think about this lady is an exception?

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irene
09/05/2016 11:35 p.m.
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Keep in mind that there will be a lot of people with diabetes who do not write around here, which are the majority and of course we are not exempt but ... there are better medicines and I imagine that something will be noticed quality of life and hope ofLife come on ... I say I don't know

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irene
09/05/2016 11:41 p.m.
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Improvements ??I think that today insulin can only be administered as 50 years ago injectable.There are more insulunas, yes, better?Let these new new plans doubt it, they have the same as the terraqueo globe.The "great advances" continuous meters apart from the gap that carry respect a capillarySport you can start making a master's degree to control basal according to schedule and others.What are better materials than 50 years ago?Yes, but that is no relief or consolation and at all diabetic advances go to the level of technological advances at a general level, why?Namely.That you are happy with diabetes.It seems great, I am not.What a living of reality and day by day, yes.I don't care tomorrow, because I am already dead in life.So because I have to worry about reaching 80-90-100 years.Give a prize ??

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LuVi
09/06/2016 4:17 p.m.

DMT1 desde los 12 años (1991)
hbA1c= 5,4

Humalog y Toujeo (mayo 2017)
Humalog y Tresiba (mayo 2016 hasta mayo 2017)
humalog y NPH (desde inicio hasta mayo de 2016)

  

@irene, @luvi I do have improved in the quality of life of which we have diabetes (see p. egEn-Espana-Ledujo-Un-37), however, I also agree that it is not easy, and that to keep "healthy" we have to make many efforts.

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fer
09/06/2016 5:06 p.m.

Diabetes Tipo 1 desde 1.998 | FreeStyle Libre 3 | Ypsomed mylife YpsoPump + CamAPS FX | Sin complicaciones. Miembro del equipo de moderación del foro.

Autor de Vivir con Diabetes: El poder de la comunidad online, parte de los ingresos se destinan a financiar el foro de diabetes y mantener la comunidad online activa.

  

@Fer was only missing that with the times they had an ascending index such as mortality diseases.Let's go then this would be to crawl to Lourdes

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LuVi
09/06/2016 9:51 p.m.

DMT1 desde los 12 años (1991)
hbA1c= 5,4

Humalog y Toujeo (mayo 2017)
Humalog y Tresiba (mayo 2016 hasta mayo 2017)
humalog y NPH (desde inicio hasta mayo de 2016)

  

@Luvi, just being able to have freedom of schedules in meals, it is already a release, and getting that glycosilada that you have, 30 years ago was impossible.

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Regina
09/07/2016 1:58 a.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

It seems bad that the advances that are today ...Idem ... And yes, new insulins are an authentic pass.And they are flat but not being able to ... Abasaglar is mine, toujeo and threeiva ... if you have them stuck with 109 and you get up with 110.
Let's not talk about Dexcom G5 ... That is a sensory orgasm, it is very expensive.Yes, but in 4/5 years we'll talk ...
Tools to be alive ... Toso the world has detecting not to be happy, to see the black side, the bad side ... but we must not stop recognizing things.And there are advances

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Marcos_J_M
09/07/2016 2:08 a.m.

Marcos - 26 años - Debut a los 14
Sevilla - HbA1c 5.5

  

There has been no significant advance in the last 20 years.30 When the portable glucometer came out, it is the only thing that I consider a real advance since the discovery of insulin 100 years ago.

Basically we follow slaves of exogenous insulin injection, just as 100 years ago.

To be happy better not to think about this and think about other things.It is of no use to fool yourself.

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Sherpa41
09/07/2016 6:36 a.m.

En 1922 descubrieron la insulina, en 1930 la insulina lenta. ¿Que c*** han hecho desde entonces?

  

Flat insulins ??It will be in you because if you read a little in the forum there are those who do not even last those 24 hours or flat.I am in the group that there are schedules that are not flat.And I have proven that exercising as much as in the morning and in the afternoon that insulin is as if it were pure sugar .. days that I have gone to train in 100 and return to dinner in more than 200. That is to be flat yes sir and toThe adjustment begins with 26 or I have come down to 12 with reducing basal for sport and nothing and now I go for 22 u.We have won in comfort.Because for example when I mixed it was a cumbersome yes, but there were 3 punctures a day, with the double -pump feathers and with the pump it is constant.That you are happy with a meter that is worth a paste, makes you carry a sensor and carry with you a transmitter and has a delay in reading and that does not have to pray so that the sensors are not defective.With the technologies that exist and currently exist.Personally I think that with the technology that there is, we could be working on something less spectacular, more reliable and much less invasive.So let's not call freedom to what is comfort.As long as you have diabetes there is no freedom.It is not being negative or seeing the black side is being realistic and that of 4-5 years I since debuting every 5 years there was a cure .. The reality is that I can die calmly waiting for a cure because I am very aware that I do notI will arrive at least that I see her .. I like to see that there are those who diabetes sees her as an award.

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LuVi
09/07/2016 9:49 a.m.

DMT1 desde los 12 años (1991)
hbA1c= 5,4

Humalog y Toujeo (mayo 2017)
Humalog y Tresiba (mayo 2016 hasta mayo 2017)
humalog y NPH (desde inicio hasta mayo de 2016)

  

Total ... that the Dexcom G5 connected to the one of continuous infusion, which automatically cuts or releases insulin according to the glycemic values, that you have an application in the mobile to which your values ​​reach you as if it were a watsApp.It has multiple dissemination above all this is Byeno for the kids (they send the values ​​to 2/3/4 members in the act), that is not a sifnifice advance ... Well I feel it but I do not share it, it seems to me that in theLast 10 years, progress has been made more than in 200 ...
What do you want a cure that doesn't even arrive?The cushions then like me ... but if you think so you will only find frustration and you will not be happy ...
And I already tell you that in 10 years we are going to forget about diabetes, not for the cure, if not because of the progress of the devices, we will be connected and end ... the price is surely exorbitant, but worse is not being able toLive, I think

Marcos_J_M's profile photo
Marcos_J_M
09/07/2016 10:20 a.m.

Marcos - 26 años - Debut a los 14
Sevilla - HbA1c 5.5

  

What effective has the Dexcom 5 with the pump to make that automatic adjustment?Because if it is not 99%, it is worth it and which device is connected to anyone to those of the gold block?It seems good for the kids even though they will have to live with that cross of looks and indiscreet questions or the typical comment of the fool on duty.But those advances "or those" new and marvelous "as long as they are not for everyone equally without exceptions are not a breakmore things than the Batman belt tell me where you see compatible that for me is an advance not to say that I make contact sports in the host receipt.What do we fuck and banish us?

LuVi's profile photo
LuVi
09/07/2016 1:17 p.m.

DMT1 desde los 12 años (1991)
hbA1c= 5,4

Humalog y Toujeo (mayo 2017)
Humalog y Tresiba (mayo 2016 hasta mayo 2017)
humalog y NPH (desde inicio hasta mayo de 2016)

  

For that rule of three the world has not advanced at all ... since there are millions of people dying of AIDS, hunger, flu, diabetes ... There are countries in which they cannot get insulin every month as it is likeThe case of Venezuela, I know by the diabetics group for the world I have, to which everyone is invited ... that is, I know first -hand stories ... and yes, reliability is 89%... But it is ogual that the cars that park alone ... They seem gilipolle, but it is the step to test before launching cars that lead alone ... this goes by leaps and bounds ... the one who does not see it is becauseDo not want to see him ... and if not asked David Casinos, gold Paralympic medalist, blind because of poorly controlled diabetes ... because they had no tools before ... Look interviews with him.

Marcos_J_M's profile photo
Marcos_J_M
09/07/2016 1:53 p.m.

Marcos - 26 años - Debut a los 14
Sevilla - HbA1c 5.5

  

We are going to compare me the advances of AIDS and the flu with those of diabetes and also put the poverty of less favored countries in those advances in the same bag.Interesting .. The next thing will be that God.To the.Buddha or any beloved have to do with diabetes and their advances.

LuVi's profile photo
LuVi
09/07/2016 3:11 p.m.

DMT1 desde los 12 años (1991)
hbA1c= 5,4

Humalog y Toujeo (mayo 2017)
Humalog y Tresiba (mayo 2016 hasta mayo 2017)
humalog y NPH (desde inicio hasta mayo de 2016)

  

Forgive that it puts me but the Dexcom G5 cannot be connected to any pump today.
Dexcom G4 connects to the Vibe Animas, but the MCG does not act on the pump, which I particularly prefer.If I think it is convenient to stop the pump, but not.Until there is a totally reliable MCG 100% the decisions I want to make, and for now neither the glucometers are reliable, how many times the analysis is repeated and there are abysmal differences.
I have not tried Dexcom G5, regardless of that I think Dexcom G4 is currently the most reliable, I do not speak or stop a bomb, but of reliability in values, but about tastes there is nothing written, this is a totally personal opinion.
Recently I entered a Facebook debate about advances in 30 years, for me the only real advance and seems very small for 30 years, are the MCG with alarms.Insulins have not been perfected so much to have spent 30 years.
For me there will be a real advance, when I have an MCG with alarms with real values ​​at the time, that is not invasive, and when there is an insulin that you put it on and take immediate effect.

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jconegar
09/07/2016 4 p.m.

Miembro del equipo moderador del foro.

Ultima prueba realizada:
Maratón San Petesrburgo (Rusia)
https://luchojuntoamidiabetes.blogspot.com/2019/07/maraton-san-petersburgo-rusa-42195-mts.html

Prueba deportiva Ruta de las Fortalezas.
http://luchojuntoamidiabetes.blogspot.com/2019/05/ruta-de-las-fortalezas-2019-54700.html

Facebook: Jorge Moto
Usuario Dexcom G6 y microinfusora Tandem T: Slim X2 Basal IQ

  

Well it will be because I have been relatively little in this ... Forgive my positive vision of all this.
I guess you are right ...

Marcos_J_M's profile photo
Marcos_J_M
09/07/2016 4:05 p.m.

Marcos - 26 años - Debut a los 14
Sevilla - HbA1c 5.5

  

I have been 30 years and about this there are opinions of all tastes, each one gives their point of view.
Advances has been in consumer electronics, such as the mobiles that 25 years ago were briefcases and only served to speak, and now from a smartwatch you can talk without carrying or the mobile, that has been advances.
But what progress has been in insulins in 30 years?Humulin already existed and there was the regular one that had to put it 30 min before eating, now it is 15 min.
There were already the glucometers that were like twice some of now, before lasted 1 min in giving you value and now in 15 or 20 sec or something less, and the values?They failed before and now.
Did the vial change for the pen many years ago, has the size of the pen changed to take less than half of its size in insulin?It is still the same.
The bombs?Well, there I miss a little because I don't know their story 30 years ago, surely they are now more exact but what has been their progress?
Anyway, for opinions, tastes, these are personal mine and really respect them all.
What is clear is that we have to fight with strength and energy and not let anything stop us.
Diabetes has perhaps given us strength to follow our goals but the reality is that for 30 years I have heard that a clock will come out that will measure glucose.

jconegar's profile photo
jconegar
09/07/2016 4:21 p.m.

Miembro del equipo moderador del foro.

Ultima prueba realizada:
Maratón San Petesrburgo (Rusia)
https://luchojuntoamidiabetes.blogspot.com/2019/07/maraton-san-petersburgo-rusa-42195-mts.html

Prueba deportiva Ruta de las Fortalezas.
http://luchojuntoamidiabetes.blogspot.com/2019/05/ruta-de-las-fortalezas-2019-54700.html

Facebook: Jorge Moto
Usuario Dexcom G6 y microinfusora Tandem T: Slim X2 Basal IQ

  

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