Diabetes patients ask for greater access to insulin pumps

fer's profile photo   04/19/2016 2:50 p.m.

The Spanish Diabetes Federation (FEDE) has started the campaign "Diabetes does not rest, you" with the aim of sensitizing about the increase in penetration of insulin pumps and the financing of continuous glucose monitoring to improve thepatient's quality of life.

In Spain, 1,235 new cases of type 1 diabetes mellitus are diagnosed every year in children under 15 and, according to data from the technology group in Diabetes Fenin, only 4 % use insulin bombs, which places Spain in the penultimate position, well below the European average located at 15 %.

76 % of patients failIn a statement.

The insulin pump currently has an integrated monitoring system capable of avoiding hypoglycemia in 83.1 % of cases and warning the patient through an alarm system.

As Lorenzo explains, "it is necessary to increase the treatment with insulin infusion pump that, despite its demonstrated effectiveness and efficiency to reduce indirect costs of diabetes caused by chronic complications and favor a better quality of life in people with diabetesType 1, still has a low use in Spain. "

The objective of the campaign is also to avoid, as far as possible, the inequality between autonomous communities.

Of all of them, only Extremadura approaches the European average with 14 % of patients who use the insulin pump.

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fer
04/19/2016 2:50 p.m.

@fer - Diabetes Tipo 1 desde 1.998 | FreeStyle Libre 3 | Ypsomed mylife YpsoPump + CamAPS FX | Sin complicaciones. Miembro del equipo de moderación del foro.
Co-Autor de Vivir con Diabetes: El poder de la comunidad online, parte de los ingresos se destinan a financiar el foro de diabetes y mantener la comunidad online activa.

  

Great Fer article, thank you.Let's see if they put less problems to provide them

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jconegar
04/19/2016 11:30 p.m.

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Personally I believe that the sensor should be financed, the bomb already knows that I am not in favor, but the sensor I think they should finance a part, nor that it was free PQ TB there are people who would put it on it and then not look at their finger andThe final would end bad control.

Especially in children, I would have to make available to parents all the advances that already exist, and to adult diabetics provide a subsidy, I made up to me to pay me 50%.

The fight should now focus that everyone has access to the advances that already exist, because we do nothing if there is much technology to make our lives easier if we cannot access it later.

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aranzazuleg
04/20/2016 9:33 a.m.
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@Anzazuleg I totally give you the reason what you say.But the pump theme is not always so easy, many patients want it and do not put it on.

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jconegar
04/20/2016 11:16 a.m.

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Well, that does not seem fair to me either, whoever wants to be able to access it, we have to be able to access the technology that is already more than proven.

Advances are of no use if we cannot access them.

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aranzazuleg
04/20/2016 11:21 a.m.
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It could give you countless names that love it and do not put it on, and that I am nobody.There is CCAA that is easy and others that there is no form or complicate it a lot.It is not fair that depending on the CCAA there are access to systems or not, as is the case of continuous glucose meters.

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jconegar
04/20/2016 11:51 a.m.

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Prueba deportiva Ruta de las Fortalezas.
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I think the main thing is that each person could decide how they want to control this disease.
Obviously not everyone will be prepared for technological change and there will simply do not decide to opt for this change, the reasons are the least.But they neither give us to choose, nor give us information, nor all the medical specialists we have, nor patients are prepared for this change to be carried out.
Let's start aware that we are in a time where technology achieves improvements that in many cases are necessary and ask that little by little and with the head this change is made, no one should have to give up these advantages because others do not have the ability tosee or implement them.Information is power, provided it is correct, and the power of decision is something that should not be neglected

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GemaTer
04/20/2016 3:30 p.m.

Conviviendo con la diabetes desde 1986
Aviva Combo Junio 2015
Freestyle Enero 2016
Dexcom g4 Octubre 2016
Ultima Hb1ac 5,7

  

What does "technological change" have to do with a bomb that is older than my two decades diabetes back?

We are going to inform ourselves a bit seriously, you all talk about the advantages, let's also look at the cons: (taken from English Wikipedia)

disadvantages of insulin pump

A disadvantage of the use of insulin pump is a greater risk of developing diabetic ketoacidosis due to pump malfunction.

This can occur if the pump battery is discharged, if the insulin is inactive by exposure to heat, if the insulin tank is emptied, if the tube loosens, if there are insulin leaks instead of being injected or if the cannulaIt bends or is twisted in the body, preventing its normal flow.

Therefore, pump users must control their sugar levels more frequently to check the effectiveness of insulin administration.

Since the insulin pump must be carried all the time, pump users need strategies to participate in activities that can damage the pump, such as sudden sports and water activities.Some users may find that the use of the pump all the time (together with the tube of the infusion equipment) is uncomfortable or difficult to handle.

Users may experience the accumulation of healing tissue around where the inserted cannula is going, resulting in a hard protuberance, under the skin, after removing the cannula.The scar fabric is not cured quickly, so after years of carrying the pump and changing the infusion place, it will make the user begin to run out of viable "points" to carry the pump.In addition, areas with accumulation of healing tissue have a lower insulin sensitivity and can affect basal rates and bolus amounts.In some extreme cases, insulin administration will have no effect on the reduction of blood glucose levels.

Users may experience allergic reactions and adhesive skin irritation of the back.

Insulin pumps, their cartridges and infusion equipment are much more expensive than the syringes used for insulin injection, there are several insulin pumps that cost more than $ 6,000;Its necessary supplies can cost more than $ 300.

History of insulin bombs

In 1963, Dr. Arnold Kadish designed the first insulin pump to be used as a backpack.[8] A more usable version was devised by Dean Kamen in 1976. Kamen formed a company called "Autosyringe" to market the product, which sold Baxter Health Care in 1981.

Link

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Sherpa41
04/20/2016 8:16 p.m.

En 1922 descubrieron la insulina, en 1930 la insulina lenta. ¿Que c*** han hecho desde entonces?

  

@sherpa41 perhaps it was not appropriate to say technological change, it is just a way of saying that as now everything changes and we are surrounded by technology, just like it happens with mobile, Ibook, digital cameras, smarthwach ... etcB, it is the same because, he continues to prefer not to change or does not find it as easy as to others adapt.For example, I still prefer to read and see paper photos.
I do not deny you something that I have heard you say many times, in a way it seems that the cure for this disease is expected, unfortunately it is like that ... but I think that there are advances and I defend that they should be more affordable.
I guess they are different points of view, but I think about it because I have seen my sister when I started to puncture with needles that had to boil, and calculate the glycemia by eye for the color of strips that you cleaned and let stand.
Ah !!And when in the year 90 I saw for the first time a bomb in some colonies for diabetics had nothing to do with current, although basically the concept is the same, which I think you are more for this reason.The concept of the dishwasher is not so different from scrubbing by hand.
When I say that you have to make the change with head and information, I not only say it for the positive part, that I see it, but what you put also necessary to know.

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GemaTer
04/20/2016 10:10 p.m.

Conviviendo con la diabetes desde 1986
Aviva Combo Junio 2015
Freestyle Enero 2016
Dexcom g4 Octubre 2016
Ultima Hb1ac 5,7

  

I still think that to comment on the bomb you have to take it on, of course it is and not having been doing apology against them, because it will be difficult to change thinking or not.
Sherpa In the World Wide Web you can find the same for and against the same thing, if you are looking for something that uncle x is a bit you will find it, and if you are looking for something that uncle X says it is half aware of more you will also find it.
The issue of the benefits of the bomb has already come out many times and the generalized opinion has been the same in this forum and in large Facebook groups.
Sherpa you have had to go to Wikipedia in English, we could not be far away.
I believe that we all agree that it may be that the pump is not all.And I think it is more than demonstrated.

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jconegar
04/21/2016 1:38 a.m.

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Well also the news of this thread is real and true.That is the main thing, what they are looking for, we do not get out much of the subject, because we would enter the same usual debate.

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jconegar
04/21/2016 1:41 a.m.

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What is a shame and an insult is that any patient wants to access a technology that can make their life less miserable and he wants it, whether insulin pump or continuous measurement, and cannot.

Especially in cases of young children whose parents cannot afford it.From any complication or problem that someone who has not been able to access these technologies has, the State is complicit.

And I will always argue that for a diabetic the continuous measurement is more important than the pump, but for the moment those who decide those things have only smeared the companies of certain bombs, and many times it happens as in Madrid that they are offering me a bombEvery time I'm going.

An insulin bomb is worth the € 2832 annual., everyone gets crazy.

Although ABBOTT arrives soon soon with its commercial persuasion skills and this changes.Too bad that is not a continuous glucose meter.

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Artorias
04/21/2016 2:08 a.m.
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I think that Artorias, Aranzazu and Jconegar have talked about the main thing about the news, it is not that it is or is not better or worse, here the question is that they give us the possibility and option of accessing it, bomb, continuous meter... etc.That for me is the fundamental

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GemaTer
04/21/2016 8:53 a.m.

Conviviendo con la diabetes desde 1986
Aviva Combo Junio 2015
Freestyle Enero 2016
Dexcom g4 Octubre 2016
Ultima Hb1ac 5,7

  

Many diabetics do not even give us all the strips we need and we have to buy them.That should be even more priority.

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Sherpa41
04/21/2016 10:06 a.m.

En 1922 descubrieron la insulina, en 1930 la insulina lenta. ¿Que c*** han hecho desde entonces?

  

@Sherpa41 Touche !!Although the theme of thread does not go for access to strips, it is a very important issue for it to get to get.It is clear that there are many more things where the SS leaves us

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GemaTer
04/21/2016 2:46 p.m.

Conviviendo con la diabetes desde 1986
Aviva Combo Junio 2015
Freestyle Enero 2016
Dexcom g4 Octubre 2016
Ultima Hb1ac 5,7

  

I totally agree.
Whenever I go they propose the bomb.What really takes is a continuous meter.

artories said:
what is a shame and an insult is that any patient wants to access a technology that can make their life less miserable and he wants it, whether insulin pump or continuous measurement, and can't.

Especially in cases of young children whose parents cannot afford it.From any complication or problem that someone who has not been able to access these technologies has, the State is complicit.

And I will always argue that for a diabetic the continuous measurement is more important than the pump, but for the moment those who decide those things have only smeared the companies of certain bombs, and many times it happens as in Madrid that they are offering me a bombEvery time I'm going.

An insulin bomb is worth the € 2832 annual., everyone gets crazy.

Although ABBOTT arrives soon soon with its commercial persuasion skills and this changes.Too bad that is not a continuous glucose meter.

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OscarelGato
04/21/2016 4:19 p.m.
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The strips seems shameful to me ... it is to get pissed off.
On the pump, we must of course demand that any patient who wants a bomb has it.
And today, carrying bomb and mcg, I think we will be almost all agree that a MCG is much more important and that is what we have to start sueing the SS

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albertot
04/21/2016 4:33 p.m.


  

There was already an initiative via change.org to ask that the free freestyle that is not an MCG itself said that in the end I do not know what the matter was in the end or if it really served for something.Something similar could be done to subsidize part of the Dexcom but seeing the problems they put to put the bomb to the people who request it for the expenses it generates we are managing ...

If you can!: -C

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sigsauer
04/21/2016 6:09 p.m.
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It is clear because they do not do the MCG and it is because everyone would ask for it, unlike the bombs.And the bombs tell you that it is not so easy either in many CCAA.

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jconegar
04/21/2016 6:49 p.m.

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Prueba deportiva Ruta de las Fortalezas.
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Usuario Dexcom G6 y microinfusora Tandem T: Slim X2 Basal IQ

  

When I get tired of spending a lot of money on a disease that I have not chosen to have, I will start selling the boots of strips that I have left over.It will be immoral but it is what there is.

Less health and less money.Let's go man.

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Artorias
04/21/2016 8:40 p.m.
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