{'en': 'The child with diabetes is still without a sanitary protocol two months after the course', 'es': 'El niño con diabetes sigue sin protocolo sanitario dos meses después de empezado el curso'} Image

The child with diabetes is still without a sanitary protocol two months after the course

fer's profile photo   10/28/2014 6:06 a.m.

The little one needs blood glucose levels to be controlled and the insulin is supplied

The "Support Commission to Álvaro" of the San Miguel Arcángel neighborhood association of San Miguel de Salinas denounces that the boy Álvaro Torres, 6 years old and with diabetes, lacks a necessary health care protocol that guarantees its physical integrity during itsPermanence in the educational center, because you need to control blood glucose levels and supply insulin.

After two months since the beginning of the school year, the Department of Education and Health "have not yet agreed to put the means that guarantee the fulfillment of the legislation in force in a case like this", they complain from the neighborhood association.

The president of the Federation of Diabetics of the Valencian Community and member of the Board of Directors of the State Federation of Diabetics, Mercedes Sánchez Benito, was interested in this case a few days ago and promised to work to meet the minor's demands.

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fer
10/28/2014 6:06 a.m.

@fer - Diabetes Tipo 1 desde 1.998 | FreeStyle Libre 3 | Ypsomed mylife YpsoPump + CamAPS FX | Sin complicaciones. Miembro del equipo de moderación del foro.
Co-Autor de Vivir con Diabetes: El poder de la comunidad online, parte de los ingresos se destinan a financiar el foro de diabetes y mantener la comunidad online activa.

  

Hello everyone, I just entered the forum to see if I found a publication on the needles and I find this news, let's not know how to qualify the associations, look there are many injustices but what I do not understand is howThey can do so much crazy about something so necessary that a child has, we have to be parents, family, friends, friends of neighboring friends .... those who have to move so that public administrations do what they have to do,It can tell me, so that the associations are, to my meda the impression that only are worth out in the photo and little more, because when these cases come out I am still waiting for some to move to fix the problem. And now, whenThey find out, they will give me even in the identity card but I don't care, Carai thought that this happened only here, these associations are already missing to put on the table, the measures that must be taken in these cases, to ApolloTo these children, since they do not do it either education, health, nor the municipalities, nor the state, who are the ones who would have to do it, then you go to the doctor and you have to listen, the child has to make a life the mostNormal possible, Carai, but with these things as parents go.That this is faded, and see that I say it with knowledge of the cause because here I am waiting for some of those of us, to say we are with you, and see that there are a few, and that now they do not say aaaaa a schem we do not find out ......... [-x [-x: -s: -s we will continue to throw to change this, happy day and better night

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alex
11/06/2014 11:31 a.m.
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Let's see, a little seriousness.I see that many people bomise this and I do not understand.
I have DM1 since I was 4 years old, that's what 27 years ago, neither at school nor in the nursery had nursing, much less sanitary protocol and, that I know, nothing has happened to me.A child with 6 years shows the drops perfectly, if you need insulin while in school, maybe you have to look for a pattern that adapts more to their schedules.If you eat at school you are taught to measure yourself and put your dose or the dining caregiver can also be taught.But it seems that it is better to change the school of school, to teach him firsthand that there is no change in his worrying life, except for the minimum care that every diabetic must carry.
Anyway, applause for those parents, they have covered themselves with glory indicating to the media that a diabetic child is a dependent child.

All the best,

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Sarita83
11/17/2014 12:25 p.m.
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Sarita, a diabetic child is a dependent child, of course.Insulin treatment is very dangerous and cannot be left alone in the hands of a child.
In all civilized countries there are nurses in schools.
The parents of diabetic children know what we have happened when we leave our children at school.I don't even want to remember.And the one that has not happened serious is almost a miracle.

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Regina
11/17/2014 2:03 p.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

Regina said:
Sarita, a diabetic child is a dependent child, of course.Insulin treatment is very dangerous and cannot be left alone in the hands of a child.
In all civilized countries there are nurses in schools.
The parents of diabetic children know what we have happened when we leave our children at school.I don't even want to remember.And the one that has not happened serious is almost a miracle.

I went to a school without nurses and I have never had a mishap, when I noticed I took a candy, I did not take the device to school and I had the hemoglobin in very good values.But of course all this was to carry a well -controlled and stable diabetes, I have taken and lead a normal life, I have never had a single problem, that was thanks to the fact that my parents and my endocrine taught me from a very young age, think thatI started in 87 with 4 years.
I think the fundamental basis is to educate the child and give it a feeling of normality, show him that this is not a limitation, he can lead a totally normal life without problems.I see it so.I think the best thing about the parents of a newly diagnosed child is that they talk to someone well controlled who has gone through it, they can see first hand that diabetes is not a problem, but one more routine.

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Sarita83
11/17/2014 2:32 p.m.
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It is not so easy to carry good control without risk of hypoglycemia.
I remember going to see my daughter at recess and find her playing and running with 33 glucose, (I was 5 years old).
The insulins of now are more stable, but the risk continues to exist, and we ask only a necessary help in the case of children.An ATS in schools is a very logical request.

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Regina
11/17/2014 6:04 p.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

When a person is in 33 and does not show symptoms we are talking about a problem that must be stopped as soon as possible.The question of this is: how many hypoglycemia does the person do a week?When someone has many hypos their body is accustomed to and loses the ability to notice them, it is best to look for the cause of those recurring hypos and eliminate them urgently.

If at any time you see that this is normal, that diabetes is unstable, consider changing endocrine without hesitation.Here in Spain there are very good professionals who can learn a lot, I put a link to my reference on this subject, thanks to her my diabetes has not given a single problem.
Link

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Sarita83
11/18/2014 2:17 a.m.
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He has always noticed the hypos, but, when he was so small and was playing, sometimes he didn't realize.The Hemo was always below 6.5 and now it practically does not have hypos (it helped the change to Lantus), but there is always some unexpected.
Even having the best treatment, there is the risk of hypoglycemia, and more in children.

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Regina
11/18/2014 10:44 a.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

In addition, we must bear in mind that in children insulin needs vary as they grow and those continuous adjustments complicate much more control.

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Regina
11/18/2014 10:50 a.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

Yes, especially when adolescence and last stretch begin.There manifests the growth hormone uploading the glucose at dawn.
Hypos can always happen, the dangerous thing is when they occur very often, because they cause you to stop noticing them and that is the most dangerous.
Nor should we be scared if the child returns from the colum one day in 200, it is corrected and seen if it is something punctual or needs an adjustment.As a child I had hemoglobin at 6.5 and now with 31 years in 6.9 and I consider that they are good values, I have no complication due to diabetes, I go to the endocrine every 3 months, I make my reviews.Do not obsess because the child is in values ​​between 70 and 140, if you see a 150 or 160 I think it is not necessary to correct.I prefer that a patient spends an afternoon in 160 to make hypoglycemia.
Especially teaching the child from an early age to measure himself is vital, he starts as if it were a game to take the trick, with the punctures he can try with a doll to take the angle and the shape of puncture.

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Sarita83
11/18/2014 1:35 p.m.
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Sonia, you have described my life to perfection.The only difference is to debut in 88 and I am 30 years old.I think it is now exaggerated and these children are going to feel strange bugs.In my school tp there were enenfermera and the teachers attended me but just what was necessary.The first time I put insulin I was 5 years old, at 7 it was normal for me to click me.When I was preschool, I returned home with 25 ... what happened?Nothing.I think that depressions and rebellions then come when you want to control the life of children so much

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tica
11/18/2014 5:49 p.m.

Miembro del equipo de moderación del foro
DM1 desde 1988
Mamá de 2 niños y a la espera del tercero
Bomba + Dexcom

  

Tica, parents control as parents that we are, but my daughter had no problem because of that, it leads a very normal life, without any problem.But when you are a father, of course it is controlled, because, while they are young, the children depend on you, and more if they are diabetic.

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Regina
11/18/2014 6:18 p.m.

Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20

  

It is clear that parents try to do our best, but we get confused 1000 times and I don't think it's bad to hear the adult experience we have debuted as children.It seems that sometimes we forget that whoever has diabetes is the kids ...

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tica
11/19/2014 2:44 a.m.

Miembro del equipo de moderación del foro
DM1 desde 1988
Mamá de 2 niños y a la espera del tercero
Bomba + Dexcom

  

Tica said:
It is clear that parents try to do our best, but we get confused 1000 times and I don't think it's bad to hear the adult experience we have debuted as children.It seems that sometimes we forget that whoever has diabetes is the kids ....

I totally agree with you.

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Sarita83
11/19/2014 11:16 a.m.
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From my humble opinion, I think you have to look for a medium term. I have the experience of having diabetes and a daughter with diabetes.And I am a nurse.We must train children to be independent and handle their illness. But there are situations that I believe should be supervised by an adult who is responsible for five years are and should be playing, as Regina says, and to some extent carefreeLife, because that is childhood. Not all children have the same maturity or handle in the same way, and it is not the same to be five as nine years. I think the safety of children in school should be guaranteedSerious such as diabetes, let's not fool ourselves, and that teachers are not authorized today to administer a sad paracetamol.

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beti
11/19/2014 12:51 p.m.
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You cannot generalize or sit on the personal experience that each one has of their own diabetes. NADIE is morally authorized to judge the attitude of some parents with a child with diabetes. Each one lives life as best as they can and they will be sufficiently suffering, I imagine.It is a very complex issue.

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beti
11/19/2014 1:17 p.m.
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Beti said:
You cannot generalize or sit Chair because of the personal experience that each one has of their own diabetes.
Chapeau.Neither with diabetes, nor with anything.

Beti said:
No one is morally authorized to judge the attitude of some parents with a child with diabetes. Each one lives life as best he can and they will be suffering, I imagine.It is a very complex theme.As they say, "fear is free" and each one puts its limit where goodly wants or can.

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aaandres
11/19/2014 2:36 p.m.

Padre de Andrés, 17 años. Debut: septiembre de 2011.
Levemir (30ud. mañana y 24ud. noche) y Novorapid (en desayuno, comida, merienda y cena 40ud aprox - 24HC/día).
Medidor continuo DEXCOM G4 desde julio 2014
Hemo: 6.2 (Sept. 2013), 7.0 (Dic. 2013), 6.9 (Marzo 2014), 6,6 (Junio 2014), 6,7 (Sept. 2014), 7,0 (Dic. 2014), 7,7 (Mar 2015), 6,9 (Jul. 2015), 7,0 (Sept 2015), 7,4 (Dic 2015), 6,8 (Mar 2016), 6,6 (Julio 2016), 6,8 (Octubre2016)... 7,0 (Mar 2018)

  

Fear is free, indeed, but if you educate a child in fear he will never dare to fend for himself outside the shadow of his parents.That child will live all if life with the trauma of thinking that it is different and that it cannot be done like the rest of the people, if that is what you want for your children there.But if you show him that this will not prevent him from leading a full life and you teach him to be self -sufficient I think he will lead a happier life and thank you.
Think that your children are the ones who know firsthand how they are, if you teach them to control, the time will come when he corrects you.For this I see very positive that parents and children go to all diabetes courses that you can, together, so that you realize that diabetes is not a serious illness, I do not even consider a disease, because a well -carehealthy person.

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Sarita83
11/19/2014 3:01 p.m.
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Well, really ... I hallucinate the one who is riding for not paying a fisting dexcom (eye, that they could pay it, and they have surely raised it ... the problem is the precedent, which is what they do not want), becauseI have it clear, a Dexcom and solved (and if you want more peace of mind for parents, mobile transmission).

It is incredible what dizzy when the solution is available to our hands, that if "measure", that if "control" that if schedules, that if you do not realize, that if ... you can forget all this with aDexcom (or an Abbot Navigator II, I speak of automatic continuous measurement).Of course it is not perfect, but it solves 90% of the child's "problem", and 90% of the parents' problem.

And hallucino that an endocrine of the SS does not come to tell them that ... and that it also certifies that it is necessary (I have said it hundreds of times, I do not want to pay me the medical treatment that corresponds to me and that works for me, that works for me,Well, I already ruined myself, but a child, mandatory if he requests it, and he who knows him, requests it).

But of course, all this is very media and they have to go with lead feet, it is not going to be that "cattle" are lacking ... and in the end, the one who pays it, is the diabetic and the family.They will try by all the means that adapts to what they want to give (which is not the same as saying that it adapts with what is there) and that seems very sad, for him, and for any diabetic.

greetings

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pabloj2000
11/19/2014 3:22 p.m.

PUBLIRREPORTAJES NO¡¡¡

  

Sarita83, your point of view is very respectable, you have also exposed it very correctly.However, and you should know, diabetes is not a world, it is another galaxy, and each one suffers from yours.For my part, I do not share your latest phrases, diabetes, for me, it is a serious illness that implies a disability, it is a chronic and severe disease, which also passes late or later, physically and psychologically (this last, all, all thedays).But what each person is a world.I do not consider myself a healthy or far person (it was, and much, before being diabetic), that it does not imply that you can have fun, throw your laughs or ... but of healthy, nothing.Is my opinion, huh?

greetings

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pabloj2000
11/19/2014 3:27 p.m.

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