How did they live the diagnosis of their son and how are they today?

Hello everyone,

I am new to the forum, Mom of Tomás, 5 years.

A few months ago, it started with Lantus, two units at 10 in the morning, and Lispro before each meal.

He was not hospitalized, since his condition advanced in a very progressively.

Receiving the diagnosis was devastating;I thought we were never going to overcome it.

However, in life everything can be, even more when it comes to a child.

Although I am still distressing, especially when on birthdays give it bags full of sweets or when in schools they deliver sweets as a prize ...

I think that anguish will always be present, deep down.I hope you can convey the importance of self -care.

How do you live it?

My daughter also started with 5 years.It was very distressing, I needed anxiolytic treatment.Today he is 28 years old and no complication.
Much encouragement, that treatments are improving a lot and complications move away more and more.
And when you take the point to fast insulin, you can eat everything.
Good control is very important.Read and learn a lot.

Thanks Regina, I'm glad to read you.Today my son is a boy and we taught him to take care and take care of him, I hope that when he is great, in this world of consumption, he takes care of himself and does not lose his beautiful smile, that was our concern when everything started ... We made little we put himThe Iport and the truth is that it is an incredible advance, not having to click your belly!I imagine when your daughter started her diabetes, there were no PENs, everything should be more complex.Thanks for answering me!And share your experience

And insulins were much more unstable, with constant fear of night hypoglycemia.
For 10 years, which began to use Lantus in the morning, we slept very calmly.
Now there are even more flat insulins, such as Toujeo.

My son is with 2 U of Lantus 1030 in the morning and Lispro before each meal, at night his diabetologist told us that four hours after he drew we would measure him, he no longer wakes up and if he has less than 150 giving it CH, in severalOPPORTUNITIES COME SLEEP, also what I read, does not ensure any of this avoiding the feared nocturnal hypoglycemia.In a short time a friend brings me from Spain the Dexcom G5, I hope it is as good as they say, and it helps us to have better values ​​and maybe I can sleep at night .... How did you do at night when I was a girl?Now she wakes up and measured?

I slept by his side, and woke up when he changed his breathing, it was a very traitorous insulin ..
The Lantus, put in the morning, no longer gives it hypos, but has to fall asleep with 140/150.
When he put it at night, they gave him nocturnal hypos. It is not a flat insulin.
It is better toujeo, but I don't know if it is tested in children.

Dexcom will help you a lot.

I have many expectations on the Dexcom!Above all x the alarms and when this in the garden I will receive the measurements on my cell phone, hopefully allow us to recover some space with my husband, although going out to eat here nomas, my mother is next to me with the desire to learn to put x xThe Iport the insulin, so that there is someone else besides my husband and me and so that if he goes home we do not have to be going to apply before meals.I am lucky to work two blocks from my house, but sometimes it is complicated, leaving to apply before breakfast, leave for the 1030 and leave 1230 to apply for lunch, to the garden it goes in the afternoon, so 16 hours we applyIn garden to take a snack.I don't know the insulin you tell me, I'm going to investigate!Thank you very much Regina !!!!!!

Maybe you can put the Lantus before, with breakfast, if you see that he wakes up well.
The toujeo lasts more than Lantus and covers well 24 hours.

They have to be separated for an hour, to be able to pass x the iPort

Ah, well, in the buttock does not hurt much ...

I use Toujeo for a year and I am much better than the Lantus although I do not know if for children they put it on.It does not give peaks and also comes in a higher concentration so you get less fluid.Before with the Lantus, I bothered me for a while after putting it (I wear about 26u), now I don't notice discomfort.Talk to it with the doctor to see if you can for children and see change.
And calm that your son will be fine.My sister is diabetic since 3 and now has 30 and is perfectly.I spend a more uncontrolled stage during adolescence throughout the hormonal theme that alters you a little, but then has no more problems.
In addition every day they get better treatments, I am sure that in a few years we will have a kind of artificial pancreas that let us lead a life without such concern.

Yesssica how good to read you and know that life with diabetes, with good care, can be taken without complications.The insulin you mention does not know if it is available in my country, I will investigate and consult it with my son's doctor.It seems that Tomi has a fever ..... now that their values ​​get high !!YESSICA How are you doing x the nights?Do you wake up to measure you?

@"Dani76", at night as I have well adjusted the basal I just have to worry about the influence of dinner rapid.If 4 hours have passed since dinner, the slow thing is barely lowered by glucose during the night (for example if I go to bed between 90-120 the lowest that I have risen are 70).I am now adjusting more because I am trying to get pregnant, in normal cases with 90 the same is convenient to take something before going to sleep in case.I know that the slow rest does not go down just so I don't worry.I carry the Free Style that is very useful to see your curves at night and know what happens and that's why I'm calm.If I wake up at midnight if I look to check that everything is fine.If you can afford a continuous monitor I recommend it because it gives you more peace of mind.There are those that you can configure alarms and let you know if you get off (the Free Style does not have that option although I have seen in the forum a device called Glucoangel that does that function).For a child I think it would be very good, the bad is the price that not everyone can pay it.
Anyway, whenever I have come down sleeping, I have woke up but in the case of your child I do not know if it will find out and how it takes a short time the same does not recognize the symptoms well so better that you go to bed with the glucose somewhat higher in caseperhaps.
Now for a few months I have started with a little hydrate diet and it is easier to control the fast doses because it arrives very little.If you are wrong and put 1 unity of less it does not go up too much and if you put it more down but it is not a very strong downturn.Investigate this option a bit online in case you think it may be fine for your child.I personally do very well but a child may have enough to adapt.
What you can try is to give little hydrate for dinner and so you will need less fast and errors will be smaller so it is difficult for you to give it a strong downturn.If you try this, do it progressively, lowering the rations of one in one and adjusting the insulin.If you do it at the same time, it gives you a downturn for not calculating well.And those days of change do control in case.
Until you have well adjusted the dose of slow and control well the quick calculation depending on the portions that I also eat if I recommend that you do some control at night to avoid scares.My sister was made when she started.It is what is most afraid at the beginning and especially in a child.

And if it is with fever it is normal for it to have it high, any disease or infection upload it.Watch the ketones that do not pass from the limits and put some extra dose quickly to try to lower it.He always waits for the effect of one to put another dose.If you have the iPort you can put 1U at a time and you see if it goes down enough or you have to put another.Keep in mind that fast insulins take effect up to 4 hours after putting it.

Anyway, this is a matter of testing and learning because each person has a different insulin sensitivity (which also changes, when you do sports for example, it increases sensitivity) and food produces different effect.What works to another may not.It is to try and know the body.You will see that in a time you have everything controlled.And for doubts you have the forum and your doctor.There are people with a lot of experience here that surely can help you.

Yesssica thanks for sharing your experience, Tomi has 2 U of Lantus and Lispro before meals 2 u and usually does not pass two U, and at night it is almost always 1u, we measure it 4 hours after dinner and if you have less than you have less than150 We give sip of something sugary and some cookie or half banana, the value depends, x indication of the diabetologist, a few months ago beginning that as he had rest of insulin in his body it was all very progressive.Until now he had no hypoglycemia, x that my fear especially to the night.Now he is with ketones, luckily his diabetologist is very human, we keep in touch x whatsapp, and gave me the indications to follow. I am very scared, I see ketones and it scares me, he was not admitted, since as everything was very muchLittle by little, he did not make ketoacidosis.The Dexcom G5 in September a friend brings me from Spain, calculation will give me a little more peace of mind.My other daughter, 7 -year -old Sol is scarletin, I have them with fever !!!!!!!

Do not worry about ketones, if it is well controlled.Fever can upload values ​​a bit, but it will also eat less.It gets very little dose and you may have to adjust with half fast units if it rises from 200.
But being a little high days, nothing happens.

Sii today walked almost 300, x luck did not reappear the ketones !!We'll see how follows!They take advantage of the two to be more pampering !!!

My daughter debuted with 10 years.At first it was hard the world came to us, now it has 26 and after so many years living with diabetes makes a normal life and you learn to live with it.My daughter is a very happy girl who lives with diabetes not for diabetes

Leo I hope I can convey my son to take care, read you, regina, Yesssica and other stories more reassured me a little ... and as the days pass the days I learn more about diabetes, and that reassures a little. Thank you!

Ask, how did they do with school?Now in the garden we take turns with my husband and we will apply before his snack, but we wonder how the school will be, so many hours without eating and with Kiokos, just like going to a little friend ... For now come hisFriends home ... but I don't want to become a mom to hold her independence. Thank you!